Hi as you can see I started this group as like so many of you out there we are just living in limbo land with very little support and just trying to get answers.
I have been in limbo land for 3 years.
I am 58 and live in the U.K in the Cotswolds. Its lovely here so many things to see and lots of canals and lakes to go fishing WHICH I LOVE. Yep even though I am female fishing is not gender exclusive LOL.
I used to teach I.T. to adults. I was employed as a curriculum manager for a local community college. I had 11 small satellite learning pods to look after too, with lots of students learning many things including I.T and other leisure pursuits such as jewellery making, aromatherapy, crafts, art etc.
I was responsible for 54 TUTORS as well. What a hectic life I had, BUT I LOVED it. I wrote lots of BOOKS ON LEARNING material for my students and even started a workshop for the blind to enable them to learn to use the computer and my tutor for this WAS BLIND she was inspirational.
When I saw my neurologist he had no idea who I was. He didnt know for example how hard it was for me to get this job, I went from a buyer in an engineering company who was made redundant to a teacher in two years by attending college and learning as much as I could about Microsoft Windows and passing all the exams and proudly becoming a teacher = THERE WAS NO WAY, I was just going to give all that up just to sit at home with a pretendy illness.
I wish the neurologists could see the real US when we walk into their offices, not just another person with a hospital number who appears to want to be ill.
Oh yes I have 9 grandkids, 1 lovely pooch called lucy, and 3 cats soon to be 4.
I am married have been for 13 years but have known my hubby for 16 years.
Well thats a little bit about me, now its over to you...............................................