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The consequences of going out
Hi guys hope you all have a lovely week.
Just out of curiosity do you find just going out can exacerbate your symptoms. I went to see my mum on Friday she lives in Bristol about 30 minutes drive from my house as my brother has come over from Australia with his wife. I had a lovely visit, I didnt drive my PA drove me there and back.
For 2 days I felt sick again and really out of sorts and the pains in my legs, fizzing burning etc got worse as usual especially at night. I feel better today dont have that brain telling me I want to be sick. Its weird as it isnt sick in the stomach its sick in the brain LOL.
Just wondered if anyone else gets this. I know my buddy tells me it is fatique which it probably is but how can you get fatigue just sitting in a car LOL.
Big hugs Mariaxx
Just out of curiosity do you find just going out can exacerbate your symptoms. I went to see my mum on Friday she lives in Bristol about 30 minutes drive from my house as my brother has come over from Australia with his wife. I had a lovely visit, I didnt drive my PA drove me there and back.
For 2 days I felt sick again and really out of sorts and the pains in my legs, fizzing burning etc got worse as usual especially at night. I feel better today dont have that brain telling me I want to be sick. Its weird as it isnt sick in the stomach its sick in the brain LOL.
Just wondered if anyone else gets this. I know my buddy tells me it is fatique which it probably is but how can you get fatigue just sitting in a car LOL.
Big hugs Mariaxx
ha ha ha. You are a nut case girl. xxxxx Mariaxx
Its amazing how much we all have in common-both the good and the bad!
Beauty, fatigue... the list goes on...rotfl ;)
Beauty, fatigue... the list goes on...rotfl ;)
Yup!!! I know exaclty what you mean Maria....and everyone whos posted too! Sometimes just opening our eyes, managing to get our heads of the pillow and get out of bed is sometimes enough! I find even the slightest amount of 'anything' sends me in a fatigue frenzie that can last anything from a couple of hours to a couple of weeks and at worst a few weeks! I must admit I am learning to pace myself so much better than I was but its still so frustrating not being able to do the things I used to do without having to forward plan! Grrrrrrrrrrrrrr............xx
I hate that you all have to go through this too but i am relieved to hear that it is just not me. Sometimes, just going to the grocery store is too much. I do not leave my house very often but when i do I pay for it. Going to the doctor requires me to nap when I get home. I am 34 and feel 134 at times.......God Bless you all!!
Yes you are right. Not being alone does help. Friends on the outside don't understand. Stress is a big factor in my feeling well and I just got a phone call from my 11 year old daughters best friends mother that she came down with swin flu last night. She was completly fine last night when they were hanging out and it just hit her a few hours after she got home. She had her at the hospital and she is home. They have been hanging out all week and now I have to be stressed about watching my daughter closely for any signs of flu. It is scary regular flu and this swin flu. Apparently there are 10 cases in the middle school thus far. So I am trying to relax and not be to stressed but it is very upsetting, to me anyway. I don't handle stress well.
It took me until at least Monday to feel better, then I have had the guy in decorating my bedroom and I am all over the place dont feel good at all.
My lady who takes me out took me to shops today and I had to get out of the supermarket or pass out, the noise, the heat and the lights overwhelmed me.
People just dont understand do they. Its difficult to explain.
I am now retiring for 3 days LOL as the bedroom is now finished and I can get into my bedroom again and my lovely bed BLISS.
Its good when we realise we are not alone in this. Mariaxx
My lady who takes me out took me to shops today and I had to get out of the supermarket or pass out, the noise, the heat and the lights overwhelmed me.
People just dont understand do they. Its difficult to explain.
I am now retiring for 3 days LOL as the bedroom is now finished and I can get into my bedroom again and my lovely bed BLISS.
Its good when we realise we are not alone in this. Mariaxx
At least now I feel normal. Over stimulated is an understatement. That is exactly how I feel. If I'm at a friends house with a few people and there are a few things going on at one time and it starts to get loud I notice I start to get really quiet and feel overwhelmed. No one can understand. Going to the grocery store is horrible. I would rather run in and grab a few items for dinner than go for a big shopping because it is just to overwhelming. The lights, the choices the everything. Start getting numbness and tingling right away.
I tend to describe what happens to me as being overstimulated, and it definitely exhausts me.
My huge guilt is that I get overstimulated often just being at home with my 4.5-year-old. Makes me feel like a bad mommy that I have to "recover" from the weekends that involve more time with the family home instead of being home alone.
I guess what really shocked me was when I went to see the Harry Potter movie with my husband awhile back and just sitting there for the 2.5 hours or whatever left me in pain and exhausted for days. I still can't wrap my brain around the idea that sitting watching a movie in a theater is too much for me ...
I don't want to become a shut-in, but I definitely pay a price for even a minor outing. :-(
I'm a little relieved to hear that's not unique, but I'm sorry so many other people have to deal with this too. Y'know?
My huge guilt is that I get overstimulated often just being at home with my 4.5-year-old. Makes me feel like a bad mommy that I have to "recover" from the weekends that involve more time with the family home instead of being home alone.
I guess what really shocked me was when I went to see the Harry Potter movie with my husband awhile back and just sitting there for the 2.5 hours or whatever left me in pain and exhausted for days. I still can't wrap my brain around the idea that sitting watching a movie in a theater is too much for me ...
I don't want to become a shut-in, but I definitely pay a price for even a minor outing. :-(
I'm a little relieved to hear that's not unique, but I'm sorry so many other people have to deal with this too. Y'know?
I've given up going out, get tired just thinking about it, especially if I've dragged myself to work all week -
I've been told I'm not making enough effort or am being antisocial or just plain boring - do you sometimes wish people could climb inside your body for a couple of days and experience what we do??
...and don't get me started on medication side effects lol
Val
I've been told I'm not making enough effort or am being antisocial or just plain boring - do you sometimes wish people could climb inside your body for a couple of days and experience what we do??
...and don't get me started on medication side effects lol
Val
I often find it difficult to go anywhere. I get overloaded by the lighting in a lot of stores (especially florescent lights) and certainly the noise of so much going on in stores. I find it difficult to have too many people over to our house to often as it also drains me and I need a couple of days or more to recover. I don't go to movies or out to eat more than once a year.
Sometimes when we go somewhere even the motion and sounds of traffic and the car engine is too hard to handle. There have been days when I can't focus on anything for more than a few minutes to half an hour.
Amazing how our life changes. Charley
Sometimes when we go somewhere even the motion and sounds of traffic and the car engine is too hard to handle. There have been days when I can't focus on anything for more than a few minutes to half an hour.
Amazing how our life changes. Charley
Hope you had a wonderful visit!
I think a comment on a 'newly diagnosed' disc from one of the MS societies said it all as it was from an MS sufferer:
What people dont remember is the effort of going out to the pub, THEN the effort of trying to keep up with conversations, listen, drink, eat often becomes too much and the fatigue comes crashing down.
You are not just sitting. You are talking, you are watching, you are thinking and processing information which is exhausting to people w/ MS or neurological conditions. It all adds up and it depeletes both cognitive and physical energy.
Are you restiing?? ;)
xxx
What people dont remember is the effort of going out to the pub, THEN the effort of trying to keep up with conversations, listen, drink, eat often becomes too much and the fatigue comes crashing down.
You are not just sitting. You are talking, you are watching, you are thinking and processing information which is exhausting to people w/ MS or neurological conditions. It all adds up and it depeletes both cognitive and physical energy.
Are you restiing?? ;)
xxx
Yes, certainly. I've had to abandon my cart mid-way through shopping, walk of out movies, cancel plans and miss work. I do have a diagnosis, chronic Lyme and co-infections, for which I'm 10.5 months into treatment.
The best way I can describe my experience of tiring easily is that even during a gentle activity, I can experience so many symptoms that I become overwhelmed and that wears me out quickly. For example, if I am walking down a hallway without symptoms, then that should be easy and not tiring. But if my eyes see flashing lights, I'm dizzy, my face is prickly, my forearms burning, and my legs are heavy and tingling, then suddenly that same walk is very draining! I don't know for sure, but I think that it's that sort of constant overload that drains me in a way that a healthy person doesn't understand.
The best way I can describe my experience of tiring easily is that even during a gentle activity, I can experience so many symptoms that I become overwhelmed and that wears me out quickly. For example, if I am walking down a hallway without symptoms, then that should be easy and not tiring. But if my eyes see flashing lights, I'm dizzy, my face is prickly, my forearms burning, and my legs are heavy and tingling, then suddenly that same walk is very draining! I don't know for sure, but I think that it's that sort of constant overload that drains me in a way that a healthy person doesn't understand.
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