segmental myoclonus

[suzsibs]

Does any one know what can cause this symptom? For the last 3 years i have been seeing a neurologist had various tests and all come back normal. I have segmental myoclonus which causes jerks in my lower spine and contraction and relaxation of muscles in my legs also causing them to jerk. I suffer alot of pain throughout my body, muscular and joint pain and have been referred to rheumatologist. Would love to hear from anyone with similar symptoms to compare notes
: )

[MrsAristotle]

Hi and welcome to the group.

Can I ask have you had a spinal MRI?

Have you ever had an accident?

SM can be caused through inflammation of the spinal cord and damage caused through demyelination and spinal injury and  other problems such as medication/drug toxicity such as  tramadol..

It must be very annoying for you I occasionally have jerking but not on your scale.

I know that with Myclonic jerking some patients are put on beater blockers like Propanonal which seems to help.

Were you ill before you started with these symptoms?

Oh and have you had your magnesium levels checked?

Mariax

[suzsibs]

Hi thanks you for the welcome.
In answer to your question i have had an MRI which shows some age related problems with my back but my doctor says this wouldn't cause SM. I've also had eeg and ct scan and am at present waiting for an appointment with my neurologist to go and have a lumbar puncture.. really not looking forward to that.
I've not had any accidents so we can rule injury out.
I've had depression for the last 8 years and have been taking venlafaxine, my doctor thought that could cause myoclonus so stopped taking them for 6 months (worst 6 months of my life used all the kleenex tissues up in the local tesco}! No change whilst not taking them if anything symptons got worse, so been back on them for the last 2 years.
I take clonazepam on a night to help me sleep as i jerk during sleep too, my husband says sharing a bed with me is like sleeping on a bouncy castle!!!
I've had blood test etc and still non the wiser as to what is causing SM.
I also feel extremely tired all the time and find just standing for a few minutes hard work.
Other than that I'm pretty much normal lol.
Suzanne x

[MrsAristotle]

Hi Suzanne so you more or less have eliminated other things that can cause SM.

So it could still be MS or similar. Just because there is no lesions doesnt make it not so.

What is next for you then?

Sorry this is short not feeling too good today.

Big hugs Mariax

[suzsibs]

Hi Maria
sorry you are having an off day, been there done that so can understand where you are coming from.
I'm waiting for an appointment with my neurologist i last saw him about 5 months ago and he sees me every 6 months (they don't seem to care that 6 months is a long time between appointments).
I'm also waiting to hear from rheumatologist, i had some x rays done on my first appointment which was about 2 months ago, again my next appointment will be 6 months after first one (wish they'd rush things through).
In the meantime i've been to doctors to ask him to try and hurry them up, my husband has suggested i take pain killers on a daily basis to see if it helps but i am loathe to take medication, especially as I'm on anti depressants, diazepam (when necessary) and clonazepam. I've never been a pill pusher always tried to muddle through but some days are so bad i maybe should give it a whirl.
I've looked into MS and other diseases and there are so many diseases that have similar symptons it just gets confusing!!!
Hope you are feeling better.
All the best Suzanne x