Hypercalcemia issue resolved (I think!)

[sophie50]

Dr. Lupo,  I have posted a few times before with high calcium, low Vitamin D and normal PTH levels.  The 2nd last test I had done came back with high calcium and low PTH levels. (Poor blood handling?) I had ALL the cancer screening tests done for a second time.  I even saw a new Endocrinologist and his fellow at the local university teaching hospital.  I told him I thought I might be SUFFERING from pHPT but that thought was simply swept under the rug!  Believe me, in the past three years I have read every medical journal I could get my hands on AND parathyroid.com from end to end repeatedly!  Each symptom had me sent to a new type of doctor and diagnosed with "something" but nothing was EVER put together!  You told me to consult with the Tampa doctors.  So I bit the bullet and paid the consult fee.  They have ALL agreed that I have a parathyroid adenoma and I will be going to Tampa for surgery towards the end of JULY.  

I just wanted to applaud you and your service here and say THANK YOU TO YOU from the bottom of my heart.  How strange is it that we can get internet doctors to hear our cry but with constant visits to our local docs we are made to feel like hypochondriacs!  What did I do wrong in that three years and countless visits to not be heard?  Sophie

[sophie50]

I have now had not one BUT two parathyroid adenomas successfully removed and am on the road to recovery.  I, too, hope that most of my symptoms will be resolved.

Thank you again for your help!

To everyone else reading........this has been a long and VERY frustrating road to diagnosis for me.  I knew there was a problem but couldn't get a doctor to REALLY LISTEN.  I kept trying and kept going to different doctors.  Some people thought I was crazy and I was mocked at times due to all my complaints.  Lost quite  a few friends as I just didn't want  to do anything.

I would like everyone to know that you CAN have a parathyroid adenoma with high calcium and very normal PTH levels.  This is what threw my doctors off.  IF YOU HAVE HASHIMOTO'S THYROIDITIS, THE PARATHYROID ADENOMA MAY BECOME ENCAPSULATED AND NOT BE ABLE TO RAISE THE PARATHYROID HORMONE LEVEL AS HIGH AS A NON ENCAPSULATED ADENOMA  BUT THE CALCIUM WILL STILL BE HIGH AND THAT IS WHAT CAUSES THE SYMPTOMS!

The adenoma will be harder to find because the thyroid is lumpy and the adenoma is just one more lump.

BOTTOM LINE......IF YOU DO NOT FEEL RIGHT, KEEP SEARCHING!  I DID AND IT HAS FINALLY PAID OFF!

[Mark Lupo, M.D.]

I am happy to hear that your parathyroid issue will be solved. Hopefully this will resolve many of your symptoms.  Thanks for the appreciation.