Btw, since it is on the back of the thigh, is it possible you are maybe sitting on something or otherwise putting pressure on that area? That could explain a hematoma.
"I was 350 pounds and am currently at 316, goal is to get to 165."
That is terrific, jan. Doing that might be the absolute most promising thing you can do for your overall health and even for this particular set of problems. Promise that when you get below 200, you'll post here to brag, okay? :)
Do you know that bodyfat itself is pro-inflammatory? It makes and excretes pro-inflammatory chemicals.
"because I'm adopted"
Pardon me if I mention that that might be affecting your behavior -- and self image, too.
"no blood tests for any kind of inflammation, don't know what a CRP is"
Simply put, it is a very common and inexpensive blood test for general inflammation. What it stands for ('C-Reactive Protein') doesn't really matter. You might possibly find that it was done, and is in your online portal. (There are also several other more illuminating tests, such as for IL-6 and TNF, that you might get one day.) Lowering overall inflammation is key for lifetime health and is involved in avoiding heart attacks in future decades.
Let me know of any developments. Good luck, jan. I'm rooting for you :) (And thanks for the compliments)
By severe bleeding, I'd meant if it's so bad that you need immediate treatment in an ER to stop it.
Speaking of the bleeding: an AVM is probably more likely to result in external bleeding. A hematoma (pocket of blood) would rarely rupture to the outside of the skin. But then the pattern of your bleeding seems more like a hematoma, as if the pocket of blood quickly empties and then that's the end of it, until the next cycle. Right?
Jan, normally I would have asked about what other unusual health problems you have. But lately, people who post don't reply at all - not even to indicate that they've read answers.
But you do reply :) So... what other unusual conditions do you have? What about family history, especially inflammatory/immune-system conditions?
"I have lymphadema of the lower extremities which I'm not sure if that has anything to do with it or not"
I think it likely does. Let's look at it his way: both can be seen as possibly resulting from leaky vessels (blood and lymph vessels).
In diagnosing, there is the principle of Occam's Razor which says to first look for a common underlying cause. Vessels are wrapped in connective tissue, which is mostly made up of collagen. If that wrapper (adventitia) is made weak/defective/permeable, then we have a theory here. Also, how does the collection of blood end up bleeding outside the skin, which us rare? Well, the skin has collagen, too.
What can break down the collagen matrix in connective tissue? There are inflammatory enzymes (matrix metalloproteinases) that do that. Diabetes, btw, is pro-inflammatory. If you are very overweight, that is also pro-inflammatory. Plus, high blood pressure can help drive blood out of weakened vessels - and pressure in the leg can he higher than in the arm.
Yep, that's complicated but it does tie it all together. And there is no simple answer to what you are experiencing Have you had any blood tests for inflammation, such as CRP?
- take pictures, with a ruler beside it
- take pictures after it has hemorrhaged/ruptured
- make a log of ruptures, and maybe rate of growth
- is internal bleeding only always in that one spot? do gums bleed when brushing teeth? any easy bruising?
- did anything notable happen before this thing first started occurring?
- taking any meds that might cause permeable blood vessels?
- any injury at that spot, even long ago?
Also:
- since it ruptures, look up arteriovenous malformations and see if that fits
- if a doc thinks it is a possible AVM, than ask them to write a standing order for a scan, for when it is big again. An ultrasound should be able to see a static hematoma, and Doppler ultrasound might be able to see an AVM's blood flow; but an MRI might be necessary to see an AVM's structure and you likely can't get a timely MRI.
- or try to visit a Vascular Medicine Specialist
- an ER is not a good place for mystery conditions -- unless you have sudden and very severe headache, then go immediately, or if there is excess bleeding when it ruptures
Those are some guesses.