In 2012 I dated a girl who neglected to tell me she had HSV2 before our first sexual encounter. She told me after the fact she was visually diagnosed with HSV2, but was never diagnosed via blood/antibody test. My nightmare began about a week or two after our first sexual contact. I experienced a very pronounced and painful cool/burning sensation in my groin, sharp twinges and tingling in the urethra, felt fatigued and nauseous for weeks following. This occurred before she told me she had HSV2 (to clarify this was not anxiety induced). Weeks later the burning/cooling sensation continued in my groin, genitals and upper thighs. A strange rash/bumps appeared on my face and gradually moved during the course of a few weeks (it followed a straight line). However, this rash was not a typical fluid filled herpes looking lesion, just firm red/brownish bumps in a line. During the next few weeks my eyes began to water non-stop, burning so badly I could barely keep them open; this continued for weeks. Approximately 4 months after initial exposure I was tested for Herpes IgG; to my amazement it came back negative. Years later these symptoms continued, but were less pronounced and I likely grew accustomed to them. About two years ago, a strange bumpy rash showed up along my spine on my lower back, upper thighs, buttocks, and lower stomach. This to me screamed sacral herpes since it apparently goes dormant in the sacral ganglia. My doctor has looked at the rash numerous times, as well as my dermatologist, who both assured me it was not herpes. I tried numerous steroid creams, loprox for a possible fungal infection, and made no difference. My doctor has no idea what is causing the nerve pains in my urethra, aching testicles, or burning sensations in my groin. The aggressive rashes on my thighs and back have caused significant hyper-pigmentation. The symptoms never seem to go away, they are constant. The strange thing is, I've never had a rash on my genitals and never had a typical herpes fluid filled cluster of bumps or lesion. The bumps and rashes I've experienced have presented as a circular ring on my stomach, and hard round ulcer type bumps on my upper thighs/buttocks.
I've been tested a total of 5 times for HSV1/2 via IgG and Western Blot, as well as every other STI (including HIV) on a typical panel. Each time it has come back negative.
I feel as though I'm living a nightmare and the symptoms are painful and psychological debilitating. I haven't been in a relationship since 2012 for fear of passing this on to someone else. I feel as though I've exhausted all options and my doctor and dermatologist are at a loss, yet still assure me it isn't HSV.
Do these symptoms sound like an aggressive form of herpes? Could it be anything other than herpes? I know for a 100% fact my ex gave me something, and I'm literally going crazy trying to find out what it is and put an end to these symptoms so I can get on with my life.
Any help would be greatly appreciated!