Aa
Help I am terrified, I dont know what to do, and my doctors are useless
I am very scared right now, I have dizzieness very frequently, and have a history of what has been passed off as all mental illness related probelms, I.E. anxiety, severe panic dissorder, some doctors say bi- polar, depression, fibromyalgia... I had a baby about 15 months ago, my prenancy was horrible (constant fatigue, higg BP sugar off, tachychardia dizzieness and more),I had a planned C section and i had a tubal (im now 28) and they didnt tell me anything when I had the tubal done. Just recently I found out it was possible to get pregnant even after a tubal. Being that I have been having symptoms that were a lot like when I was pregnant, but my doctors office sucks, I always get this rude, judmental, intimidating nurse when I call and she barely lets me get a few words out. I was going to go get a blood test for pregnancy, but then began to bleed, for the last 2 days I seem to be having a fairly normal period (although my periods are weird since my son was born, and I have bleeding in between) so I just bought a couple of pregnancy tests and did one, it said negative... so with having a tubal, my period going on, and a home test negative, I wish I could stop worrying.... but I am so dizzy, I went from eating like crazy, and gaining weight,to not being able to eat hardly at all, sensitive to smells (like I was when I was pregnant) anxiety,headache, nausea, my temprature is up a bit, (was 99.5 earlier, and I was hot and sweay, now down to 99.o and im cold and chilled) I have frequent small bowel movements, I am scared to death of being pregnant again, but even if I am not Im still scared..
I have been chewed up and spit out by the world of psychiatry, I am VERY sensitive to medications, (which doctors dont seem to believe, I have HORRIBLE side effects to most psychiatric meds) I cant even drink any alchohol or caffine... im so sensitive... I have had many periods of time.. moths, up to 6 or more, where I am BARELY able to function, even on the base level. Where just going to the bathroom is Hell... When I was 16 I had something happen that woke me up in the night, felt like a firecracker had gone off in my head, after that I couldnt eat, sleep, or walk.. I had to stay in my mothers room because it was closer to the bathroom... I was sure I was dying...walking a flight of stairs has my heart pounding and head reeling. I was looked at by a doctor, who did a "poke" test, and then sent me to a psychiatrist.... since then I have had horrible bouts of similar things...
I have had way too many symptoms to list... but the mind fog, the dizzieness, heart palpitations, numbness and tingling in extremeties, hot flashes, chills, tachychardia, vision weirdness, I have had some tests done, but with such scattered symtoms, and a family history of mental illness, no doctors have taken all this serioulsy. I just want to be able to have a normal life... I had to be home schooled from the age of 12 on... I have never been able to work a full time job, and I have never been stable enough to even think about trying to go to college. I want to at least be a good mother for my son, But I am so afraid of these crippling problems taking away so much... I need real help, from a good doctor who cares enough to really take a long hard look at my history, but the town im in seems to have no good doctors....My GP told me, after I went in because of a SEVERE dizzy spell that i had "probably stabbed myself in the ear with a Q-Tip" and all the other things I tried to tell him about were "vaugue"....my life has been a nightmare, always in fear of whats lurking around the corner next.... Im desperate, but in such bad shape I can hardly do anything for myself... if not for my boyfriend I dont know what I would do... I dont know where to turn... can anyone help me? there is much more to my story but I dont want to post too long...
I have been chewed up and spit out by the world of psychiatry, I am VERY sensitive to medications, (which doctors dont seem to believe, I have HORRIBLE side effects to most psychiatric meds) I cant even drink any alchohol or caffine... im so sensitive... I have had many periods of time.. moths, up to 6 or more, where I am BARELY able to function, even on the base level. Where just going to the bathroom is Hell... When I was 16 I had something happen that woke me up in the night, felt like a firecracker had gone off in my head, after that I couldnt eat, sleep, or walk.. I had to stay in my mothers room because it was closer to the bathroom... I was sure I was dying...walking a flight of stairs has my heart pounding and head reeling. I was looked at by a doctor, who did a "poke" test, and then sent me to a psychiatrist.... since then I have had horrible bouts of similar things...
I have had way too many symptoms to list... but the mind fog, the dizzieness, heart palpitations, numbness and tingling in extremeties, hot flashes, chills, tachychardia, vision weirdness, I have had some tests done, but with such scattered symtoms, and a family history of mental illness, no doctors have taken all this serioulsy. I just want to be able to have a normal life... I had to be home schooled from the age of 12 on... I have never been able to work a full time job, and I have never been stable enough to even think about trying to go to college. I want to at least be a good mother for my son, But I am so afraid of these crippling problems taking away so much... I need real help, from a good doctor who cares enough to really take a long hard look at my history, but the town im in seems to have no good doctors....My GP told me, after I went in because of a SEVERE dizzy spell that i had "probably stabbed myself in the ear with a Q-Tip" and all the other things I tried to tell him about were "vaugue"....my life has been a nightmare, always in fear of whats lurking around the corner next.... Im desperate, but in such bad shape I can hardly do anything for myself... if not for my boyfriend I dont know what I would do... I dont know where to turn... can anyone help me? there is much more to my story but I dont want to post too long...
Staceydm is on target. My entire life up to last year was filled with depression, anxiety and "going off the deep end".
When I started studying natural approaches to health issues (encouraged by my son who is a Chiropractor Neurologist) I made many changes and am a healthy happy woman today. We started by taking a series of test. Brain chemistry, hormone tests, a full blood workup. All these tests were to indicate where I am in the scope of function. Now, I take the right supplements that are custom for me, and follow a custom exercise routine.
We are all unique. What works for one, may not be the right solution for another. I trust naturopaths more than medical doctors.
When I started studying natural approaches to health issues (encouraged by my son who is a Chiropractor Neurologist) I made many changes and am a healthy happy woman today. We started by taking a series of test. Brain chemistry, hormone tests, a full blood workup. All these tests were to indicate where I am in the scope of function. Now, I take the right supplements that are custom for me, and follow a custom exercise routine.
We are all unique. What works for one, may not be the right solution for another. I trust naturopaths more than medical doctors.
Well, all I can say is thank goodness you're living in a time you have MRI's and MRA's and technology that can help diagnose obscure diseases. Because I had a similar course of problems in my 20's and 30's with all kinds of weird symptoms and being shifted from one dr. to another. It wasn't till my 40's that a doctor dx'd my condition as basilar artery migraines, plus fibromyalgia, plus vestibular problems. I am 55 and know what SOME of my problems are and I have a smorgestbord of problems. True you have a problem of anxiety, who wouldn't? Considering what you've been through. I would say ignore those drs. who say its all in your head. Go to doctor who specializes in dizziness and balance disorders and have a workup done. Preferably this dr. would be an otoneurologist considering your symptoms. I hope your insurance allows it. As far as your blood sugar surges during pregnancy, it sometimes happens and could forshadow diabetes in your future. (like it did in me) So keep an eye on your blood sugar - especially if you have a family history of diabetes and have weight issues. Without becoming a hypochondriac, you do need to be become pro-active in your health care, that goes for every one. Watch your weight, do some exercise, check your blood pressure with a good machine every so often (Omron brand is good). I don't know your age, but it becomes ever so important as you grow older. Don't let the doctors scare you cause you're a woman - often young women get pushed around by the medical profession. It's not right.
I am so glad I came across your post. I dont need to tell you my symptoms because they are exactly the same as yours. That is why I never felt like listing them all on the forum. the dizzy spells are especilly worrying me because they happen alot in the morning when Im laying down so I feel like it is a circulation issue. I just had the firecraker in my head thing about 2 weeks ago which i described as an explosion in my head but since then,no headaches. Kind of scary. This has been all happening since a surgery I had 6 months ago, all those symptoms always changing. Not that I should be giving out advice because no one has been able to help me either but I am feeling better. Someone who went through this before told me to just be well and think well your mind does control alot of your physical health. I dont know what your faith is either but god does heal especially mentally if you have the faith that he can. My natural doctor tells me I have a pituatary -hypothalmus imbalance.. This controls all you bodily functions nerveous system.circulatory sleep cycles etc. Sometimes ssris can put this back into balance or natual stuff that he has. I am just about ready to try it. It sounds like you could have had some imbalances going on and the pregnancy mad it worse.Just really try to think well dont worry about it enjoy your baby. I keep telling myself, what is the worse that could happen I pass out and die if that is going to happen there is nothing I can do about it if the doctors cant help me anyway right? Oh by the way I am extremely sensitive to medicine also and the doctors dont believe me. What state are you in? I am in michigan and my natural dr. is awesome. He helps alot of people . Hope ypu feel better.
I didnt hear an audible sound in my head I dont think, it just FELT like that.... I have never had a brain scan, which I think they should have done when I was 16, which is when they started medicating me. I was over medicated for a many years.... I finally went off meds on my own for a while, but have not really been able to get back on anything successfully since, it is like my body just started rejecting them all..... I do want to start fresh with a new doctor, but in the area im in there seems to be very little to choose from and I am not origionally from here.. Thanks for your reply.
I feel where you are coming from and when you read some of the stories on this forum or any other forum, you will see that a lot of us are "chewed up and spit out" it seems. I have been to 3 neurologists, working on my 4th and cannot get a diagnosis. I know that I am not crazy! All of my symptoms started in 2004 when I had my 1st child and it went downhill when she was 3 months old and I was 24, I am now 27, about your age. The neuro I saw last suspected MS and Myasthenis Gravis, but never took it that far with testing.
I have tingling, numbness, ptosis(drooping) in my left eye, I had to be hospitalized because I couldn't walk, talk, comprehend, and I had tremors. My left eye had drooped so bad that they thought I had a stroke. I finally saw a neuro while in the hospital and he told me that I was just probably having bad migraines. I didn't even have head pain or a headache! He told me that you can have a migraine and not feel it and then he popped out "I think you are bi-polar as well". I cried and wanted to go home. I know that I am not bi-polar! They just thought I was making this all up. I went to a doctor at Wake Forest who told me that I was having hormonal issues and told me to go online and find an herbal remedy. I was appalled! I understand where you are coming from when it comes to one doctor seeing that you have been diagnosed with depression or anxiety and another follow through and say "yep , that's what's wrong with you, just give it up already".
Has anyone ever done an MRI of your brain or a CT scan? If not I would ask for one. If you have to go to another doctor and tell them that you have never seen anyone for the problems you are there to see them for and start over fresh without giving him medical records from other places, this might help get a fresh eye on your case. I would tell the doctor that you can get records if he'd like, but wait until he starts his own investigation. Tell him about when you were little and the popping sound. What other tests have you had done? I forgot to tell you that I understand where you are coming from with the medicine thing. I can barely take any medicine that won't upset my stomach or give me the shakes. My kids are the same way.
How long have you been on medication for mental health issues? I have read that you could have some of the same problems you are having from these medications. Were you on these med's when you had the popping sound in your head and do you still hear the popping sound? The popping sound could be something totally different from the other symptoms. There is such thing as Exploding Head Syndrome. I know it sounds scary, but it's not that bad, except that it can be annoying. Hope some of this helps you. I am here to talk to you anytime.
Pietiangel
I have tingling, numbness, ptosis(drooping) in my left eye, I had to be hospitalized because I couldn't walk, talk, comprehend, and I had tremors. My left eye had drooped so bad that they thought I had a stroke. I finally saw a neuro while in the hospital and he told me that I was just probably having bad migraines. I didn't even have head pain or a headache! He told me that you can have a migraine and not feel it and then he popped out "I think you are bi-polar as well". I cried and wanted to go home. I know that I am not bi-polar! They just thought I was making this all up. I went to a doctor at Wake Forest who told me that I was having hormonal issues and told me to go online and find an herbal remedy. I was appalled! I understand where you are coming from when it comes to one doctor seeing that you have been diagnosed with depression or anxiety and another follow through and say "yep , that's what's wrong with you, just give it up already".
Has anyone ever done an MRI of your brain or a CT scan? If not I would ask for one. If you have to go to another doctor and tell them that you have never seen anyone for the problems you are there to see them for and start over fresh without giving him medical records from other places, this might help get a fresh eye on your case. I would tell the doctor that you can get records if he'd like, but wait until he starts his own investigation. Tell him about when you were little and the popping sound. What other tests have you had done? I forgot to tell you that I understand where you are coming from with the medicine thing. I can barely take any medicine that won't upset my stomach or give me the shakes. My kids are the same way.
How long have you been on medication for mental health issues? I have read that you could have some of the same problems you are having from these medications. Were you on these med's when you had the popping sound in your head and do you still hear the popping sound? The popping sound could be something totally different from the other symptoms. There is such thing as Exploding Head Syndrome. I know it sounds scary, but it's not that bad, except that it can be annoying. Hope some of this helps you. I am here to talk to you anytime.
Pietiangel
Have an Answer?
You are reading content posted in the Undiagnosed Symptoms Community
Discharge often isn't normal, and could mean an infection or an STD.
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.
