I need your help guys! I feel like I am at wits end. My nights feel like I won't make it until morning. I need tips and advice on what has gotten you out of a horrible flare up. I have been in this cycle of misery since 4 weeks and 3 ER and 4 Dr. visits have not helped. It seems like I just can't break this cycle:
Symptoms Started 4 weeks ago:
Strange taste in my sinuses/ mouth.
Complete dryness in my sinuses, eyes, mouth, throat. Absence of any mucus. My whole body felt like a shriveled up prune. My hands look like I am 80 years old. I drink loads of water, highered salt intake, pee like crazy. Still feel dehydrated since weeks.
I get up to 4 panic attacks a day, every day since 4 weeks.
My eye sight changed to more blurry.
Burning pain episodes in my whole body. Swelling in my legs and hips. Burning pains in my kidneys.
Allergic reactions to meds and food. I am nauseous all the time. No appetite at all. Lost 14 lbs involuntarily.
Can't fall asleep and when I finally do, I either wake up having a panic attack, blood pressure problems or I feel like I am dry like a desert and need to down water.
When first waking up I have excruciating pain in my body like there is toxins running through my veins.
I get very dull headaches. Like they are inside my brain.
My heart is racing, I get heart palpitations, stinging pains and burning pains in my chest.
My body trembles and I get tremors. Excessive sweating. Excruciating burning pains. My stomach feels very hard at times.
My body feels like it's attacking itself. Arms and legs have tingling pain and numbness. Inflammation. Muscle pain and bad muscle twitches. Ongoing pain between my shoulder blades. My whole body crackles at times.
Serveral blood tests were done. Dr. say they are fairly normal, but they always showed the following:
White Blood cell count
ANA are 1:320 homogenous
ER prescribed Lexapro and some other med to which I all had bad allergic reactions. Weed makes me more anxious. CBD doesn't seem to help. I take Xanax when needed. I take 0.25mg each up to 4x a day, because I get up to 4 attacks daily and in my sleep. Started on Gabapentin.
I eat food and within half an hour I feel hot, flushed cheeks, I get nauseous and the worst dizzy spells and here I am again downing loads of water.
My Lymph nodes especially the ones under my arm pits are painful and feel swollen. Chest feels tight like something heavy is on it. That comes and goes. My hands and feet are freezing cold and clammy. Burning pains all over my body and uncontrolled muscle twitches.
Thyroid came back normal
24hour heart monitor came back fine.
Lupus Dr said it's not Lupus.
MS Spinal tap is negative.
I have had similar attacks off and on about every 2 years since 2011. My next Dr. appointment is not until the 20th.
I tried Epsom salt bath, but the heat seems to make it worse. I am also diagnosed with Fibromyalgia, but this is NOT my typical Fibro. I am desperate!! I want to feel better and don't know how. Any of you who can relate... what helps? What gives you relieve? Herbal? Medicine wise? I was thinking of going back to ER, but so far they keep sending me back home after giving me Lorazepam with the diagnoses of Panic attack and heart palpitations, or they blame it on my Fibro. This is the worst I have felt in my 47 years of existence. What are we overlooking? What else should they test for? Thank you for taking the time to read and give advice. I am sorry it is long ❤️