Medical mystery for 15 months - here are symptoms:

[oliviamarie12345]

-24/7 head/neck/face/eye pain
-thirst/sweating a lot
-flushing of face/ears
-arthritis in fingers
-sometimes have low blood oxygen (80s)
-tachycardia - even while sleeping (anxiety was ruled out) admitted to hospital for resting of 140
-raynauds in fingers and toes

two new symptoms
-severe diareah/abdominal discomfort/etc  - just had CT of abdomen/pelvis/adrenal glands (results not back)
-severe swelling of foot (cannot walk on it) and very cold to touch

all of my tests -

All positive:
12/07 - influenza
1/08 - EBV/mono - extremely high numbers
9/08 - Lyme and Candida
12/08 – High levels of vitamin B12 (1452)
12/08 – Low Lymphocyte (18.5)
2/09 – MRI of cervical spine abnormal – “A well-defined structure in the left lobe of the thyroid gland about 2.1 cm. appears high signal on T2-weighted imaging and T1-weighted imaging. Ultrasound recommended. A few septations present in the structure.”
3/09 – Ultrasound confirms MRI  2.1 cm
3/09 – High levels of catecholamine 760, dopamine 106, and noraponephrine 678 (blood)test is abnormal, but 24 hour urine test is normal
- Raynauds in fingers and toes

All negative:
1/08 - Ct and MRI of head and face without contrast
2/08 - Spinal tap for pressure
3/08 - Parasite stool sample
4/08 - rheumatoid diseases
4/08 - ENT sinus test
5/08 - 3-D ultrasound of heart
5/08 - Cholesterol
5/08 – Chest X-ray
5/08 - CMV
6/08 - eye tests
9/08 - Thyroid
12/08 - Toxoplasmosis
12/08 - CBC
12/08 - Sed rate (2)
12/08 – EMG of leg
12/08 – Vitamin deficiencies
12/08 – Wheat allergy
12/08 - MRI of cervical spine without contrast
1/09 – EMG of Left arm normal
1/09 – SSEP evoked test normal
2/09   – x-rays of cervical spine
4/09 – 24 hour catecholamine is normal
4/09 – EKG

-just had liver/kindey funtion tests - results not in yet and CT of abdomen/pelvis/adrenal glands

[oliviamarie12345]

all of my thyroid tests are normal
i had an MRI of brain 15 months ago
and the calcium/magnesium tests are normal which would be off if it was parathyroid
but I do think I should get another MRI of the brain

i have a large cyst on my thyroid which is being removed
could a cyst mess with your thyroid even if the thyroid function tests are normal?

[Dr. Kokil Mathur]

Hi
Thanks for writing to the forum!
Your test results and symptoms all point towards endocrine imbalance involving thyroid, parathyroid and adrenal glands. Consult an endocrine specialist.You may need a MRI of brain to rule out pituitary involvement.
Hope this helps. Please let me know if there is any thing else and do keep me posted. Take care!