My doctor won't listen to me...please help!!!

[sherrifortier]

OK, I got ill the day after Mother's day last year, and that ended me in the hospital for 4 days (diarrhea but it was only blood, not feces). Bloodwork, xray, CT scan, gastroscopy, endoscopy, ultrasound, and no answers. Platelets are steadily getting higher (testing every 3 months) currently at over 700,000. WBC is above normal, suggested I take Aspirin. I also have Petechiae all over my body, with newer ones showing up all the time, and I wake up with bruises.

Since then, I've been losing weight (20lbs since mid-Nov), I'm very tired, and weak, and now have edema in my legs, hands and feet.

I've had diarrhea for a week now, and am on a waiting list (August is the soonest they can get me in) to see a hematologist for a Bone Marrow Biopsy. That's too long to wait, in my opinion.

I am having to take 40mg Lasix daily for the water retention, and it doesn't help, my urine output is very poor.

I am frustrated, and worried, because my symptoms are that of Hodgkin's almost to a "t". Do you have any suggestions?
I'm 37, have had 3 kids, a complete hysterectomy 12yrs ago, and have Fibromyalgia.

[Londres70]

Have your clotting factors been checked?  

I will agree with the last poster that a systemic infection can cause these symptoms too, but I don't think that is what it is.

[sherrifortier]

I'm allergic to latex.

I do have H.Pylori infection, but was told that wouldn't affect my platelets being this high.

Thanks for the info on the aloe vera, I never knew.

[smidlapp]

One thing you might consider is that you have a parasitic infection or systemic yeast overgrowth. These can be very hard to diagnose and can cause a wide variety of symptoms that include everything you have experienced. With fibromyalagia your immune system is somewhat compromised, which places you at higher risk for these type of infections.
Keep an open mind. Maybe find a doctor who practices alternative therapies. These MD's are generally very good and are leary of giving out toxic medications without clear indications.
As for aloe vera, it is very safe if you use it right. I'm not suggesting you try it tho. Anyone using a herb or medication should have as much knowledge as possible on the effects and side effects of what they are taking.
  The latex part of the aloe vera plant (the linning underneath the leaf surface) is a very strong laxitive. The remainder of the plant is very mild and has been used by herbologist for centuries for all sorts of conditions. The salicylate content in aloe vera, however, can block the positive effects of guaifenesin if you are using that medication for your fibromyalgia. Otherwise, aloe vera juice (with the latex removed) is as about as toxic as apple juice. Keep an open mind. There is always more to the story... Good luck

[sherrifortier]

i will, thanks

[Londres70]

Keep us posted on your outcome.  

[sherrifortier]

I have been referred tHematologist, but it's 1.5 hrs drive to Edmonton, and I'm on the waiting list (since August) just for the 1st appointment and it's a year wait. I don't think I can wait until August since this started in May, I've been getting worse everyday.
I am seeing a new doctor on the 1st, and will have to start from scratch, but maybe he'll be willing to fast track me. I'm worried that it is cancer, Leukemia seems to fit, and if that's the case, then it's wait, wait wait some more. Wait to see the doc, wait for bone marrow biopsy, wait for transplant...just wanting a name to put to this illness, so I can try to deal. The unknown is just as painful as the pain I feel.