Hi,I'm a 43 year old woman with
1985 Stabbed in head in right temple/6" drain got blood poisoning because ER never gave me any antibiotics, no brain damage or anything
1987 pos TB
1993 severe hypo/hyperpigment, high ALTs, alopecia, high ANA, malar rash, neg lupus,dx polyendo dysfuntion, scoliosis, DJJ, single encapsulated tubercule, dx HCV (dx?pos surface ant/RIBA inconcl, bx no inflammation,damage to portal triads, fat, no PCR done)
1994 Intron A tx PCR neg after tx, horrible side effects, Tubercule gone
1998 pco hysterectomy, left sialedectomy and lymph nodes/benign hyperplasia, RLL pneumonia severe, COPD/chronic bronchitis, 4 shattered molars when biting down other teeth broken, chronic hypoxemia
2002 meningitis
2003 mild atrophy of heart and tricuspid valve insufficiency, mild diffuse atrophy of the brain
2004 cervical fusion plate, foramenotomy, deg disk stenosis spondyl throughout spine
2005 diverticulosis, adenoma colon, gi bleeding, IBS,Metabolic Syndrome/Severe Steatosis/NASH tx glucophage
2006 dx/tx hashis hypothyroid,sjogrens
2007 inflamed lacrimal glands/eyes (gallium), bloody spot in duodenum, trigonitis
Family hx: fatty liver in everyone on P. grandma side, all have diabetes, autoimmune, endo complications, test false positive for surface antigen for HCV, neg or inconclusive RIBA, neg PCR.
I get chills, big lumps on my temples that take month to go away often, pit and scar. My hairline is growing into my eyebrows where bumps are. I get headaches, dizziness, loss of mental capacity that persists. No dark urine on plaquenil ( 200 bid). BP 118/80 usually, basal temp 95-96, temp 96-7 during the day, I get low fevers, have to use heating pad to stay warm, sun sensitivity w/o blistering rash,sensitive to CYP3A4 type drugs esp. SOMA and toradol.Others with porphyria say I get tested. Should I see hematologist to test for porphyria or similar disease?