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Autoimmune disease like symptoms, negative tests, doctors wont treat me
I have read a few posts where the individual was able to receive ideas to what they had from others here. With the number of autoimmune diseases its difficult to find the possibilities. With more people in hoping some ideas come forth we havent thought to test for yet.
I would like to start by saying this is a last attempt please something post. I am not able to find a doctor to treat me so I have to do everything with just my wife and I. A doctor one day decided, by my looks (tattoos and peircings) I was a drug addict looking for a high not really sick, never mind the college degree, new home, clean UA, no tracks, etc. But because of that in not able to find any doctors to treat me. I don't think im able to handle the pain im in any longer and the thought of 20 more years getting worse.... No, I can't.
I have every symptom of rheumatoid arthritis. If I remain still for 20 min my hands go numb, they stiffen up, my elbows get sharp pains. The mornings are the worse. I try not to sleep but my body eventually stops. On waking I can do nothing but lie there for a good 30 min. I try not to cry so my wife doesn't worry. The hurt is everywhere, as is the swelling. I never know which part of me will be the worse that day till I finally start moving. Vie burned myself a few times with water too hot trying to relieve the stiffness. Ive lost 32 pounds this last year. Breakfast? Can't get the food to my mouth till lunch, then not hungry cause I hurt. Im so tired but I have related sleep with pain now and I don't want either.
I had one doctor recently that before he got my file and talk to the one doc, sent me off for bloodwork and to a nephrologist. I have chronic kidney disease but a lesser form. 2 5cm cysts on my liver. The bottoms of my lungs are scarred. I was about to get a referral to a rheumatism and mess when the doctors spoke and I was dropped as a client. What tests we did all came back negative. My blood shows a man at the peak of health. Not even inflammation present.
I don't know what else to do anymore. Im feeling my options are no more and am starting to dwell and fixate on the last option left.
I would like to start by saying this is a last attempt please something post. I am not able to find a doctor to treat me so I have to do everything with just my wife and I. A doctor one day decided, by my looks (tattoos and peircings) I was a drug addict looking for a high not really sick, never mind the college degree, new home, clean UA, no tracks, etc. But because of that in not able to find any doctors to treat me. I don't think im able to handle the pain im in any longer and the thought of 20 more years getting worse.... No, I can't.
I have every symptom of rheumatoid arthritis. If I remain still for 20 min my hands go numb, they stiffen up, my elbows get sharp pains. The mornings are the worse. I try not to sleep but my body eventually stops. On waking I can do nothing but lie there for a good 30 min. I try not to cry so my wife doesn't worry. The hurt is everywhere, as is the swelling. I never know which part of me will be the worse that day till I finally start moving. Vie burned myself a few times with water too hot trying to relieve the stiffness. Ive lost 32 pounds this last year. Breakfast? Can't get the food to my mouth till lunch, then not hungry cause I hurt. Im so tired but I have related sleep with pain now and I don't want either.
I had one doctor recently that before he got my file and talk to the one doc, sent me off for bloodwork and to a nephrologist. I have chronic kidney disease but a lesser form. 2 5cm cysts on my liver. The bottoms of my lungs are scarred. I was about to get a referral to a rheumatism and mess when the doctors spoke and I was dropped as a client. What tests we did all came back negative. My blood shows a man at the peak of health. Not even inflammation present.
I don't know what else to do anymore. Im feeling my options are no more and am starting to dwell and fixate on the last option left.
Did you see your lab results yourself? I have had doctors tell me all my lab results were fine. Later I requested copies of my lab stats & found out that I have been chronically high in calcium and low in vitamin d. It looks like I have a parathyroid problem. I have been miserable for the past 10 years. Good luck and don't give up!.
Did you see your lab results yourself? I have had doctors tell me all my lab results were fine. Later I requested copies of my lab stats & found out that I have been chronically high in calcium and low in vitamin d. It looks like I have a parathyroid problem. I have been miserable for the past 10 years. Good luck and don't give up!.
I've been concerned about adrenal fatigue with myself and my husband for awhile now. I was looking up things to do for it. I've been supporting my adrenals with supplements, cut out caffeine and added more healthy foods. I'm looking into Ashwagandha. It's an adaptogen herb.
Have you ever tested for that?
It's a saliva test taken 4 times a day to see where your cortisol levels are at.
Adrenals seen to be more about stress, fatigue, Insomnia, can cause autoimmune issues. I havenst seen anything about pain.
Just a thought.
Have you ever tested for that?
It's a saliva test taken 4 times a day to see where your cortisol levels are at.
Adrenals seen to be more about stress, fatigue, Insomnia, can cause autoimmune issues. I havenst seen anything about pain.
Just a thought.
I'm not sure what others tests you might order to figure things out.
Have you tried acupuncture or chiropractic care to help with the pain?
Have you tried acupuncture or chiropractic care to help with the pain?
I'm so sorry you are feeling so awful and were treated that way.
I don't know if this is helpful to you, but when people complain of pain, fatigue etc I suggest testing for vitamin and mineral deficiencies.
In September 2015 my health went downhill fast. It hadn't been great for years, but this really scared me. I was anemic and Vitamin D deficient.
People are typically low in magnesium as well. Many times B12 is low too.
You might have absorption issues if you have autoimmune problems.
You need to get blood work done.
You're probably deficient in Vitamin D,
possibly Vitamin B12. Serum magnesium, even RBC wasn't really helpful to me but I did get tested. It's not accurate. Neither is serum B12.
If you've taken anything with B12 within 4 months of a blood test, your results will be inaccurate and test at a higher level.
Vitamin D should at least 50ng or 125nmoL
Vitamin B12 must be above 500, but closer to 1,000 is optimal.
Most people are also low in magnesium since our soils are depleted.
If your doctor prescribes D2, do NOT take it. It's harmful. Only take D3 and it's fat soluble so it needs fat to be transported in your body. It should be taken in the morning or with lunch because it can disrupt sleep. Think of it as the Sun Vitamin. Typically 5,000-10,000iu daily will raise levels. Then get a blood test in 3 months to see where you're at. If at an optimal level, you figure out what is the best maintenance dose to continue to take daily. D3 will better utilize your Calcium and increase absorption. This will use up more of your Calcium.
*******if you have kidney issues you have to be very careful with magnesium. Your kidneys are able to get rid of too much magnesium. There are magnesium lotions or 'oils'. The foot baths are another way to get magnesium by adding Epsom Sakt of magnesium Chloride Flakes. (Magnesium Oil is magnesium chloride).
Magnesium should be taken at least two times daily. Not more than 100-200mg at a time because the body cannot absorb more than that.
You can take it orally and topically. Magnesium foot baths are helpful too. Magnesium is needed to balance your Calcium.
If you're not on meds that conflict, Vitamin K2 (MK4) is needed to direct Calcium in your body.
It prevents it from being deposited into your arteries and soft tissue. About 35% cannot tolerate the Vitamin K2 MK7 form. They feel heart palpitations and anxiety.
It's important to drink enough water to stay hydrated and flush the excess calcium from your body.
Also important to eat/drink more high potassium foods. You want your electrolytes to be balanced.
Banana, avocado, sweet potato, coconut water, etc.
If you need B12, it's possible you'll need injections. Folic acid (B9...methyl Folate) will help the b12 work. Avoid Vitamin C for an hour because it hinders B12 absorption. B12 will also use up your potassium, so again, eat/drink foods to increase potassium intake.
You can go online to see if there is a lab near you. If there is, it's easy.
You order your own blood test. They don't take health insurance. You don't need a doctors referral. You pay online. Print the form and take it to the lab. The labs I found near me were Quest.
You can only go to the labs on their website. If you go elsewhere, the other man will charge you again.
Direct labs *******.
I don't know if this is helpful to you, but when people complain of pain, fatigue etc I suggest testing for vitamin and mineral deficiencies.
In September 2015 my health went downhill fast. It hadn't been great for years, but this really scared me. I was anemic and Vitamin D deficient.
People are typically low in magnesium as well. Many times B12 is low too.
You might have absorption issues if you have autoimmune problems.
You need to get blood work done.
You're probably deficient in Vitamin D,
possibly Vitamin B12. Serum magnesium, even RBC wasn't really helpful to me but I did get tested. It's not accurate. Neither is serum B12.
If you've taken anything with B12 within 4 months of a blood test, your results will be inaccurate and test at a higher level.
Vitamin D should at least 50ng or 125nmoL
Vitamin B12 must be above 500, but closer to 1,000 is optimal.
Most people are also low in magnesium since our soils are depleted.
If your doctor prescribes D2, do NOT take it. It's harmful. Only take D3 and it's fat soluble so it needs fat to be transported in your body. It should be taken in the morning or with lunch because it can disrupt sleep. Think of it as the Sun Vitamin. Typically 5,000-10,000iu daily will raise levels. Then get a blood test in 3 months to see where you're at. If at an optimal level, you figure out what is the best maintenance dose to continue to take daily. D3 will better utilize your Calcium and increase absorption. This will use up more of your Calcium.
*******if you have kidney issues you have to be very careful with magnesium. Your kidneys are able to get rid of too much magnesium. There are magnesium lotions or 'oils'. The foot baths are another way to get magnesium by adding Epsom Sakt of magnesium Chloride Flakes. (Magnesium Oil is magnesium chloride).
Magnesium should be taken at least two times daily. Not more than 100-200mg at a time because the body cannot absorb more than that.
You can take it orally and topically. Magnesium foot baths are helpful too. Magnesium is needed to balance your Calcium.
If you're not on meds that conflict, Vitamin K2 (MK4) is needed to direct Calcium in your body.
It prevents it from being deposited into your arteries and soft tissue. About 35% cannot tolerate the Vitamin K2 MK7 form. They feel heart palpitations and anxiety.
It's important to drink enough water to stay hydrated and flush the excess calcium from your body.
Also important to eat/drink more high potassium foods. You want your electrolytes to be balanced.
Banana, avocado, sweet potato, coconut water, etc.
If you need B12, it's possible you'll need injections. Folic acid (B9...methyl Folate) will help the b12 work. Avoid Vitamin C for an hour because it hinders B12 absorption. B12 will also use up your potassium, so again, eat/drink foods to increase potassium intake.
You can go online to see if there is a lab near you. If there is, it's easy.
You order your own blood test. They don't take health insurance. You don't need a doctors referral. You pay online. Print the form and take it to the lab. The labs I found near me were Quest.
You can only go to the labs on their website. If you go elsewhere, the other man will charge you again.
Direct labs *******.
1 Comments
Thank you for the response.
I am deficient in vitamin D and another I forget. I don't think a vitamin defincency is enough to cause all the symptoms in having though. It probably contributes to some but isn't the root cause of what's causing my swelling, joint pain, etc.
I don't have a doctor that will treat me so hearing I can order my own blood work is fantastic. Before I got dropped by my most recent doctor he did order some blood work to test for the normal autoimmune issues. Everything came back negative. Are there any specific tests I can order for myself that will help in narrowing down my ailment?
I am deficient in vitamin D and another I forget. I don't think a vitamin defincency is enough to cause all the symptoms in having though. It probably contributes to some but isn't the root cause of what's causing my swelling, joint pain, etc.
I don't have a doctor that will treat me so hearing I can order my own blood work is fantastic. Before I got dropped by my most recent doctor he did order some blood work to test for the normal autoimmune issues. Everything came back negative. Are there any specific tests I can order for myself that will help in narrowing down my ailment?
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