light-headed over 1 year

[cass197]

So around i year ago a started to have lightheadedness that seemed to resolve after eating, a few hours after eating i would crash and become very tired, this i could deal with for about 8 months but then it got a lot worse suddenly in a day in which i was bed-ridden for a period of around 4 months. i had a "blood-ache" feeling, extreme weakness and fatigue, brain fog, diziness, frequent urination, "pulp" in my urine, extreme sensitivity to food in which i would become a lot more lightheaded, heart pain, lower flank pain, and pressure in my head. i have been tested for thyroid, diabetes, hypoglycemia, blood pressure is normal, had an mri done and it came back fine, cortisol checked and is normal, it is not anxiety or depression related but tried xanex for a few months to humor my doctor (did not help my symptoms), also checked for lyme, and ovarian cancer.

Other information:
I was in the mountains a week before first symptoms and got a urinary tract infection 1 week prior. (treated this with oregano cranberry and garlic pills)
Also thought i had a urinary tract infection prior to "second wave" of symptoms but it was b.vaginosis apparently.
i am a 20 year old female, i eat well am a good weight (5' 8" and 135 lbs )  and was previously active.
i am vegetarian and was vegan when symptoms occurred but now eat fish and it has not helped.
i had a staph infection 3-5 months prior that was reoccurring. happened from wound in hot tub.
i cannot eat sugar or drink caffeine and haven't for around 10 months. it immediately makes my symptoms worse. i used to drink a lot of coffee and eat a lot of sugar.
i do not drink smoke or do drugs.

[Mari566]

I have had the same issue, vertigo,, dizziness, etc... and have had every test under the sun and other than high blood pressure, and weight gain that is all they came up with.

[Ricobord]

While there are a few things that could be causing your symptoms, Lyme is still a possibility.  It can account for all your symptoms. Blood tests are quite unreliable with a rare false positive, but lots of false negatives.

The highest quality lab for testing is IGeneX in CA.  You need a doctor's authorization and you need to pay up front.  I got about 2/3 of the cost reimbursed from my insurance co.  Best money I ever spent.  I had tested negative on a blood screening test and a CSF test and had stumped 12 doctors before I took matters into my own hands and asked my PCP to authorize IGeneX tests.  I tested positive on my Western Blot.

Your best bet is with a Lyme Literate Medical doctor (LLMD) who is familiar with the symptoms and can make a diagnosis or not based on your symptoms and history with tests supporting that decision.  You are welcome to come check out the Lyme forum for more information.

[mkh9]

It still sounds like a blood sugar problem You may want to get retested. Also, have you had a complete blood count, B 12 and iron studies. You could be B12 deficient from being vegan. If you were deficient in B12 you would have to get shots for it. By diet it takes a long time to get your B12 stores back. I guess the other think after that would be to go to a lyme specialist even though you had a lyme test done. I would start with the more obvious tests and go from there.