Aa
Vomiting for a Month Straight pls help
Hello everyone, 17F, 5'2 overweight (Idk the lbs) No substance use of any kind.
I was wondering if anyone had any ideas on what the issue could be based on the symptoms / info below, it's not stress I promise. Or, if anyone had any insight on what to Do next, I have a gastric emptying exam scheduled in a couple days but please let me know what you think, thank you so much!
I’ve been throwing up for over a month now every time I consume anything; solids and liquids, even water, it seems that liquids actually trigger the vomiting more than food. It seems like I'm losing weight but I don't have a scale so I can only go on appearances.
I’ve had constant and extreme nausea for over a year now but it’s gotten worse and I have very little appetite. Back in March and February I had no appetite for 2 months and then it came back but now I just never have it.
I feel really extreme and uncomfortable early satiety and have non stop bad bloating, I’ve had the bloating for 2 years.
I had bad acid reflux and heartburn for over a year and I took the 2 week dose of omeprazole and the reflux stopped then but once I finished the omeprezole it got worse and now it's just masked by the vomiting.
I have bad abdominal pain all over that changes places, I have for a long time and some chest pain in the past couple months.
I’ve been super lightheaded and dizzy which makes sense because I'm likely dehydrated but it’s pretty bad. I also always have a headache and have been having unusual and uncomfortable neurological issues since this year, including memory issues, limb weakness/numbness/tingling, visual hallucinations, difficulty comprehending, ringing and muffled ears, can't focus eyes, blurry eye sections, eye pain, severe light sensitivity, muscles spasms, and it seems like I've suddenly developed minor dyslexia.
My jaw really hurts all the time too along with earaches and face pain.
Sleeping has gotten bad because I always wake up prematurely with really bad lower back pain and can't fall back asleep. I’m always extremely exhausted but it's hard to fall asleep.
It was also difficult to swallow around when the vomiting started but that’s gotten better.
My periods have suddenly gotten very painful this year and exacerbate the nausea and other GI issues.
I got an endoscopy and a colonoscopy but there weren’t any visible issues, haven't gotten the tissue biopsies yet though. I got tested for H. Pylori and it was negative. My celiac blood test was also negative.
My doctor has me on Miralax every day but I didn’t have a lot of constipation to begin with, as shown in the abdominal x-ray which was normal. My labs were normal but I have low vitamin D which I’ve had for a long time.
Background,
I had anorexia for a year and a half back in 2020-2021 and lost 50lbs, then gained it back if that could be causing anything.
There’s no chance I’m pregnant.
I had extremely low iron and took pills for it for a little under a year, now I'm just slightly low.
Never had Covid before to my knowledge
I have clinical depression
I have many other symptoms but I just want to figure this out first.
I was wondering if anyone had any ideas on what the issue could be based on the symptoms / info below, it's not stress I promise. Or, if anyone had any insight on what to Do next, I have a gastric emptying exam scheduled in a couple days but please let me know what you think, thank you so much!
I’ve been throwing up for over a month now every time I consume anything; solids and liquids, even water, it seems that liquids actually trigger the vomiting more than food. It seems like I'm losing weight but I don't have a scale so I can only go on appearances.
I’ve had constant and extreme nausea for over a year now but it’s gotten worse and I have very little appetite. Back in March and February I had no appetite for 2 months and then it came back but now I just never have it.
I feel really extreme and uncomfortable early satiety and have non stop bad bloating, I’ve had the bloating for 2 years.
I had bad acid reflux and heartburn for over a year and I took the 2 week dose of omeprazole and the reflux stopped then but once I finished the omeprezole it got worse and now it's just masked by the vomiting.
I have bad abdominal pain all over that changes places, I have for a long time and some chest pain in the past couple months.
I’ve been super lightheaded and dizzy which makes sense because I'm likely dehydrated but it’s pretty bad. I also always have a headache and have been having unusual and uncomfortable neurological issues since this year, including memory issues, limb weakness/numbness/tingling, visual hallucinations, difficulty comprehending, ringing and muffled ears, can't focus eyes, blurry eye sections, eye pain, severe light sensitivity, muscles spasms, and it seems like I've suddenly developed minor dyslexia.
My jaw really hurts all the time too along with earaches and face pain.
Sleeping has gotten bad because I always wake up prematurely with really bad lower back pain and can't fall back asleep. I’m always extremely exhausted but it's hard to fall asleep.
It was also difficult to swallow around when the vomiting started but that’s gotten better.
My periods have suddenly gotten very painful this year and exacerbate the nausea and other GI issues.
I got an endoscopy and a colonoscopy but there weren’t any visible issues, haven't gotten the tissue biopsies yet though. I got tested for H. Pylori and it was negative. My celiac blood test was also negative.
My doctor has me on Miralax every day but I didn’t have a lot of constipation to begin with, as shown in the abdominal x-ray which was normal. My labs were normal but I have low vitamin D which I’ve had for a long time.
Background,
I had anorexia for a year and a half back in 2020-2021 and lost 50lbs, then gained it back if that could be causing anything.
There’s no chance I’m pregnant.
I had extremely low iron and took pills for it for a little under a year, now I'm just slightly low.
Never had Covid before to my knowledge
I have clinical depression
I have many other symptoms but I just want to figure this out first.
With your brain power and drive, you must certainly have theories. What are your top two?
1 Comments
I am honestly not sure, there are so many things that have so many of my symptoms. I was thinking maybe it could be an ovarian thing but it could be caused by restrictive eating damage. I am not a hypochondriac but I've definitely even considered cancer.
"exhaustion"
That's very non-specific. But is common in hyper immune dysfunction. Consider even the naming of Chronic Fatigue Syndrome, a mystery immune condition. Or consider the example of synthetic interferon, used as an Rx for hepatitis. It causes fatigue, and then so would endogenous interferon that the immune system might unleash. (That's just ajn example of the many ways the immune system can cause tiredness.) Plus low O2 and low water contribute.
If we can get your stomach calmed down so you can absorb water, and also get sufficient sleep, a lot of side issues might be resolved. Or what if you ask for IV liquids for hydration? That seems a fair thing to do.
Anemia? Well, maybe poor absorption of B12 and/or iron because of gut inflammation. So that'd be a secondary effect. (Or was it from autoimmune destruction of RBCs? Probably not.)
"Also, the hair thing. I haven't been able to find anything like it on the internet." and "Tiny painful hairs all over that are barely in skin, not ingrown"
Well, how about linking to MCs and eczema or contact dermatitis or folliculitis?
That's very non-specific. But is common in hyper immune dysfunction. Consider even the naming of Chronic Fatigue Syndrome, a mystery immune condition. Or consider the example of synthetic interferon, used as an Rx for hepatitis. It causes fatigue, and then so would endogenous interferon that the immune system might unleash. (That's just ajn example of the many ways the immune system can cause tiredness.) Plus low O2 and low water contribute.
If we can get your stomach calmed down so you can absorb water, and also get sufficient sleep, a lot of side issues might be resolved. Or what if you ask for IV liquids for hydration? That seems a fair thing to do.
Anemia? Well, maybe poor absorption of B12 and/or iron because of gut inflammation. So that'd be a secondary effect. (Or was it from autoimmune destruction of RBCs? Probably not.)
"Also, the hair thing. I haven't been able to find anything like it on the internet." and "Tiny painful hairs all over that are barely in skin, not ingrown"
Well, how about linking to MCs and eczema or contact dermatitis or folliculitis?
1 Comments
Sure, I have pili multigemini, Do you think that could be related?
"Food has felt like it is stuck in my chest before but not like I'm choking, just like it's not moving."
Any doc should have jumped to eosinophilic esophagitis over that, and done an endoscope biopsy of the esophagus, looking for the eosinophils with staining the snipped tissue sample. Eosinophils don't normally belong there. They count the numbers of eos found and that gives the Dx. Also, EoE sufferers have to severely restrict the foods that cause the sensitivity reactions. Some even have to get a food tube surgically inserted into the stomach to bypass the esophagus.
(Right, you don't choke because it's in the esophagus, not the trachea airway.)
I'm going to leave this answer by itself because to me it stands out as easily diagnoseable. Whereas so much of immune dysfunction is not easily diagnoseable.
You really really should pursue this most of all right now because it has a clear pathway of diagnosis to treatment.
Any doc should have jumped to eosinophilic esophagitis over that, and done an endoscope biopsy of the esophagus, looking for the eosinophils with staining the snipped tissue sample. Eosinophils don't normally belong there. They count the numbers of eos found and that gives the Dx. Also, EoE sufferers have to severely restrict the foods that cause the sensitivity reactions. Some even have to get a food tube surgically inserted into the stomach to bypass the esophagus.
(Right, you don't choke because it's in the esophagus, not the trachea airway.)
I'm going to leave this answer by itself because to me it stands out as easily diagnoseable. Whereas so much of immune dysfunction is not easily diagnoseable.
You really really should pursue this most of all right now because it has a clear pathway of diagnosis to treatment.
"I have pili multigemini, Do you think that could be related?"
I'd have to say probably - but yet I don't know how offhand. It'd be too much of a coincidence to have various oddities being unrelated, though.
"have had low vitamin D for most of my life"
vit D is anti inflammatory, so being low exacerbates your pro-inflammatory tendencies. I'd supplement it.
I'd have to say probably - but yet I don't know how offhand. It'd be too much of a coincidence to have various oddities being unrelated, though.
"have had low vitamin D for most of my life"
vit D is anti inflammatory, so being low exacerbates your pro-inflammatory tendencies. I'd supplement it.
"My headaches are also one of my biggest problems. I had them constantly of course when I was eating restrictively but they never really went away, and they have just gotten a lot worse this year, - it's constant."
Although I very much dislike trendy fad diets, for some people the carnivore diet does wonders - because it is the ultimate elimination diet while preserving calorie intake instead of starvation. Are you familiar?
Although I very much dislike trendy fad diets, for some people the carnivore diet does wonders - because it is the ultimate elimination diet while preserving calorie intake instead of starvation. Are you familiar?
1 Comments
Yes I am, but I have just never liked the taste of meat, I don't eat it mostly because of that. I don't generally eat restrictively since I stopped being anorexic but still have headaches always. I haven't eaten anything in days though and not much over the last month now because of the discomfort it causes.
"I am honestly not sure, there are so many things that have so many of my symptoms. I was thinking maybe it could be an ovarian thing but it could be caused by restrictive eating damage. I am not a hypochondriac but I've definitely even considered cancer."
Cancer is always possible - but not likely at all in your case.
No, your likely cause is immune dysfunction. Your most diagnoseable aspect of that is the EoE. For starters, it's not the end all, be all. It's the tip of the iceberg.
It is not unsual for someone like you to get wrongly accused of being a hypochondriac by docs who don't know what to do. Even wrongly referred to a shrink.
Tired now? This was quite a marathon session :) Lots of progress though, I'd say.
Cancer is always possible - but not likely at all in your case.
No, your likely cause is immune dysfunction. Your most diagnoseable aspect of that is the EoE. For starters, it's not the end all, be all. It's the tip of the iceberg.
It is not unsual for someone like you to get wrongly accused of being a hypochondriac by docs who don't know what to do. Even wrongly referred to a shrink.
Tired now? This was quite a marathon session :) Lots of progress though, I'd say.
1 Comments
Hehe, well thank you so much for your insight!
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