I don't know if you have been tested for this or not, but your symptoms sound like Crohn's Disease to me. If you have been tested and it came back negative then I am happy in that regards for you. If you have not been tested, then look up the condition to see if the symptoms sound familiar.
Thanks for the response, I do believe I have similar symptoms and have been looking into this but the doctors have never mentioned as a possibility, I don't think I have been tested do you know how this is done? Thanks
Is it generally related to your period? Endometriosis can cause extremely severe symptoms, including back pain, leg pain, pelvic pain, GI symptoms, bladder symptoms, etc. The problem with endometriosis is that it can be very hard to diagnose. It generally takes a laparoscopy to diagnose it. Endometriosis is caused by endometrial tissue - tissue from the lining of the uterus - that backs up and gets out into the abdomen - and implants itself on various tissue. It "takes root" if you will, and survives, but as your period arrives the tissue expands and irritates whatever tissue to which it is attached. I even had a patient who had a lump in her abdominal wall which expanded and hurt whenever she had her period. I diagnosed it as an "endometrioma" which the surgeon doubted - but when he operated on her, that is exactly what he found. This was a piece of endometrial tissue that worked itself right through the muscle wall of the abdomen! If your symptoms seem related to your periods at all, it will be important to keep a diary of all of your symptoms, as well as your menstrual cycle.
This is also somthing I have been looking into as my friend has this, however it can be worse during my periods but sometimes can attack me with no link to them, for example today I'm one of sickest I've been so far with it and my period stopped well over a week and half ago.
I also get a lot of ulsers on my tongue when this thing flares up tiny white pin pricks but sore, and today I feel very shakey weak and a lot of muscle pains can hardly move my legs - this hasn't happened before but all other symptoms are my usual but geting a lot worse each time it attacks me , thanks for the response.
My symptoms sound very similar to crohns however I go through period of loosing weight but only small amounts not drastically and periods where the weight comes back on, I also never have a problem eating food even when I'm ill unless I have sickness like today then obviously I don't feel like food but generally fine with eating, most days I actually feel hungry a lot more than I would say average really.
Please keep in mind that this is just my opinion and a gastroenterology is the best person to rule this out. Here is a list of some of the test that they might perform.
A physical examination may reveal an abdominal mass or tenderness, skin rash, swollen joints, or mouth ulcers.
Barium enema or upper GI series
Colonoscopy or sigmoidoscopy
Computed tomography (CT scan) of the abdomen
Endoscopy, including capsule endoscopy
Magnetic resonance imaging (MRI) of the abdomen
Enteroscopy
A stool culture may be done to rule out other possible causes of the symptoms.
This disease may also alter the results of the following tests:
Albumin
C-reactive protein
Erythrocyte sedimentation rate
Fecal fat
Hemoglobin
Liver function tests
White blood cell count
I wish you the best and hope you find your answer.