I would suggest finding an internist who will look at all symptoms and all body systems to rule things out. Keep trying doctors until somebody helps you. It's a crappy process, but eventually you'll find someone! You can do it!
The postivie ANA and lesions make one think of Lupus. Lupus is an autoimmune disease that is very hard to diagnose. Except for the positive ANA, there is no other known test.
Something you can do to help yourself is watch your diet. Some with Lupus find they can't eat: tomatoes, potatoes, eggplant, mushrooms or peppers. These cause pain in some arthritic and Lupus conditions.
I am sorry that you are suffering in this way and that the rheumies haven't found the answer.
Remember, the squeeky wheel gets the oil... so the patient who continues to complain gets the attention.
Wishing you the best.