Aa
undiagnosed severe full body nerve pain, twitching and spasms.
HI
I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.
Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).
I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)
The rhumatologist said fibro and neuro disagrees. he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly. why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?
my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside. lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be. is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together
I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.
Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).
I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)
The rhumatologist said fibro and neuro disagrees. he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly. why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?
my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside. lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be. is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together
well i checked out the spin ebsite and this Arachnoiditis
sounds like whats going on with me. but you know i lot of this sounds like it.
how did you come to thqt for me i am woundeing.
sounds like whats going on with me. but you know i lot of this sounds like it.
how did you come to thqt for me i am woundeing.
yes sed rate elavated along with c-reative. but not high numbers
all this stated when i movd to conneticut and my husband had cat too. so i have always woundrerd about lyme. have been tested many times. negative.
what do u think about diet change like juicing
all this stated when i movd to conneticut and my husband had cat too. so i have always woundrerd about lyme. have been tested many times. negative.
what do u think about diet change like juicing
Ask the muscular specialist to do a samotosensory test.This can detect abnormal spots of the spine and back to the brain.
My neuromuscular DR ran this test after I had ask,okay I begged,this is how they detected the lesions in my spine.MRi's don't always detect the small things.
My neuromuscular DR ran this test after I had ask,okay I begged,this is how they detected the lesions in my spine.MRi's don't always detect the small things.
what kind of test is it . how is it done. is it same thing as evkoe potential. it was done 1999 normal.
one thing i have noticed past yrs my -spine mri normal and recent one mentioned some deformity typ stufff and said one causes spasms.
one thing i have noticed past yrs my -spine mri normal and recent one mentioned some deformity typ stufff and said one causes spasms.
Yes its an evoked potental.If you had this in 1999,you want to have it repeated.Technology has changed and equipment more efficient.What actually is wrong with the c-spine,this could be attributing to the spasms,nerves and pain
A BIT MORE DETAILS.
I remember before 1998, when i was a teenager i use to wakee up in the middle of night with my ears on fire. (dont remember one or both) and i would rub them for a while ten when it ok i go back to sleep. another this is for a few months i had burning in left elbow.
the forward 1998, newly married and suddenly started feeling starnge sensation in neck. odd sensatons that made it hard for me to look at people. ( not visualy just by sensation) still have this problem. it was a wiered pain in neck. then i started to have the same thing in my haands. i had hard time touching metal. it would send firy feeling up arms. the thraot tightness started with lump to swallow. went to ent who couldnt figure it out. a month later it all goes away and i became pregnant. in midd pregnancy legs tingle and feel numb. dc says norml. then tingling around lips. goes away. 3 days after labor boom all sysmptoms haywire. severe left sided at first and then both. numbness, tingling type stuff. lot of inflamation in muscle and joints. muscle cramp in legs at this point. see a neuro, mri and eeg normal.
sountil 2003 i see 2 differnt docs. all work up normal. 2003 flu shot and all hell breaks loose.
always sick with upper respitory stuff.
before the flu shot stabbing pain had already stated but flu shot made it worse.
my hol face in vibrating.
i have also felt my eyeball shake. when close like vibrating
I remember before 1998, when i was a teenager i use to wakee up in the middle of night with my ears on fire. (dont remember one or both) and i would rub them for a while ten when it ok i go back to sleep. another this is for a few months i had burning in left elbow.
the forward 1998, newly married and suddenly started feeling starnge sensation in neck. odd sensatons that made it hard for me to look at people. ( not visualy just by sensation) still have this problem. it was a wiered pain in neck. then i started to have the same thing in my haands. i had hard time touching metal. it would send firy feeling up arms. the thraot tightness started with lump to swallow. went to ent who couldnt figure it out. a month later it all goes away and i became pregnant. in midd pregnancy legs tingle and feel numb. dc says norml. then tingling around lips. goes away. 3 days after labor boom all sysmptoms haywire. severe left sided at first and then both. numbness, tingling type stuff. lot of inflamation in muscle and joints. muscle cramp in legs at this point. see a neuro, mri and eeg normal.
sountil 2003 i see 2 differnt docs. all work up normal. 2003 flu shot and all hell breaks loose.
always sick with upper respitory stuff.
before the flu shot stabbing pain had already stated but flu shot made it worse.
my hol face in vibrating.
i have also felt my eyeball shake. when close like vibrating
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