VITAMIN D DEFICIENCY GOOD & BAD DAYS?

[alifogg]

Hi, does anybody know why my Vitamin D deficiency symptoms (muscular pain and weakness, depression, memory problems etc.) seem to come and go? Some days I can feel almost normal and others, I am practically non-functioning.

This fluctuation in my symptoms has been present since the beginning.  Now I am being treated, the good days have got better but I can still suffer these severe flare ups... it is very demoralizing as it feels like I will NEVER get better.

Does anyone else experience this and know what might trigger a flare up? Could I have another condition that is causing this?

Thanks

[9na]

I feel the same way! That's what this forum is for, isn't it? Sharing, helping and understanding each other :)

[alifogg]

I am crying now! It is so good to talk to someone going through the same thing, thank you so much.

[9na]

Oh. Tear in my eyes right now - that is by far the worst part for me too! My wonderful kids not getting the attention and care that I SO want to give them! Especially my 1,5 year old - I'm staying home with her as I did with her brother - and I remember when he was between 1 and 2, all the fun we had. Now? She often plays on her own and I sit in a chair... But she's a happy kid, and my husband says it is actually a good thing - I AM there, at least, as a stable and secure mom, and she gets to explore the world and returns to me when she needs me. But yes, I truly recognise your feelings! And I think they add to the depression at times, really.

What we need to do, I think, is to give ourselves credit for trying our best, and to put a lot into the good days when we actually manage to be there like we want to all the time.
Also I read a lot with my oldest one. He loves it when we're on the couch together, under a blanket, reading several books ;) And when I feel that me having a bad day has caused me to not be there for him as I should - I often sleep together with him at night, trying to 'replace' some of the closeness and love. Also, a 4 year old understands quite a lot when we take the time to explain carefully.

[alifogg]

Wow, took a look at the symptoms thread and I can see I am not alone in feeling like this!

I have been so confused about my health these last few years and now I can see that it is down to this deficiency. I believe I started to become deficient during my first pregnancy 5 years ago, although the symptoms only became really severe with this pregnancy. Before that, I had severe PMS, was increasingly tired and caught every bug and cold going.

The most difficult thing at the moment is coming to terms with not being able to be the mum I want to be to my 4 year old. To be available emotionally (I do my best but I'm often depressed and in pain), to be cheerful and energetic and just to be able to run around with him... I have basically been lying on the sofa for the last 8 months... I feel so bad for him. How do you cope with your little ones?

[9na]

Hi - and welcome to the forum! I think I forgot that last time, I was kind of in a hurry, but wanted to respond ;)

I know it is a lot to grasp - it still is to me, and I got the diagnose early in december.
A have 1,5 year old and a four year old myself, so our situations have some similarities - even though a 7 weeks old sure needs you more at night than my kids do ;)

I have noticed that if I do too much one day, there is a chance that the next day (or the same evening - with me, the changes often come during the day too - I can be fine in the morning, then worse throughout the day, or the opposite...) will be hard.
Lately I have been wondering if the weather affects my symptoms. Lately I have been worse in wet weather, and better on stable cold days, for instance. But it may be coinsidental. Sleep probably is very important - I find it very difficult getting enough sleep. The kids make it very difficult to sleep during the day, and I find it a bit sad to go to bed at 8 in the evening... ;)
I also think that my periods have an impact on my symptoms - but I have to tell you that all of this is just my personal thoughts and ideas, I'm no health professional ;)

If you read in our symptoms-thread, I guess you'll se some symptoms that you recognise? It seems we all experience this somewhat different, but there still are some similarities :)

[alifogg]

Hi, thanks for responding... this is all quite new to me, just trying to get my head around what I am dealing with here! Sometimes I feel so desperate.

Have you noticed a pattern with the flare ups? is it after physical exertion, for example, or a bad night's sleep? I am in quite a tricky situation, with a 7 week old baby that doesn't know night from day and an energetic four year old..!!

[9na]

YES!

I have been on D3 for about 2 months now, and still I have the same fluctuation - some days I'm so bad that I'm certain there's got to be something else going on. But then some better days come along, and I'm positive.

I think this is characteristic for this deficiency, really, and we just have to hang in there until we're healed I guess. It's not easy though, and I often think the worst myself...

Hope we will all be better real soon :)