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Vitamin D deficiency symptoms
With all the sites out there that have info on Vitamin D, their just doesn't seem to be one that has all the symptoms that can accompany vitamin d deficiency. I'm going to list my symptoms, so that others may have some insight, in layman's terms. I hope anyone else with the deficiency would also post theirs.
Please DON'T GIVE UP! It took 6-7 months to really feel an improvement after taking high doses of vitamin D.I had a blood test every 2 months in order to see if my levels dropped under 50 ng /ml or went above 80 ng/ml ( I started at 16ng/ml). I took 6000 Ui in the beginning and then 4000 daily for maintanance.
I had pains all over my body and muscle twitching which gradually developed in 5 years. Now, after 9 months I am 75% better and my vitamin D levels are constant at 70 ng/ml ( I even have a notebook were I wrote down my pain level daily and I noticed the gradual improvement). I take 4000 UI daily to maintain my Vitamin D levels. If I take 2000 UI daily my levels drop (-20 ng/ml) in only one month! We need a high dosage to maintain the levels in the normal range and constant blood tests to see how we absorb this vitamin.
I even had vision changes (I saw colours with my eyes closed, visual snow and increased after images and floaters) and tinnitus and everything improved by 75 % (except the floaters which never go away), but dont forget: It took 7 months to really see great improvement and each month I am improving!
I felt like fainting and this symptom is gone,too. The pain was unbereable, I thought I was going to die and the doctors couldn't find anything! I had every test under the sun, even Lyme disease tests and nothing was found. And this miracle vitamin simply improved it all and I hope to be 100% one day. But 75 % is enough to lead a normal life. The pain is in the background and i barely notice it. now .
I DO believe that most cases of fibromyalgia are misdiagnosed and they are actually Vitamin D deficiency cases. I also had symptoms like muscle twitching, vibration sensation all over my body, burning and stinging sensation which are mostly gone. My nervous system was falling apart.My initial VItamin D level 9 months ago was 16 ng/ml, so I can't say I had osteomalacia ( it wasn't low enough to cause damage to the bones). I think it is something that affects the nervous system rather than the bones and it isn't well understood by the medical community. I think Vitamin D directly affects the brain.
PLEASE DON"T GIVE UP! IT really takes 6-7 months to really feel better. If you give up, the Vitamin D levels drop really fast and you will never know that Vitamin D deficiency was actually the real cause of your strange and horrible symptoms!
It really gave my life back. I wish you all the best. Ioana
I had pains all over my body and muscle twitching which gradually developed in 5 years. Now, after 9 months I am 75% better and my vitamin D levels are constant at 70 ng/ml ( I even have a notebook were I wrote down my pain level daily and I noticed the gradual improvement). I take 4000 UI daily to maintain my Vitamin D levels. If I take 2000 UI daily my levels drop (-20 ng/ml) in only one month! We need a high dosage to maintain the levels in the normal range and constant blood tests to see how we absorb this vitamin.
I even had vision changes (I saw colours with my eyes closed, visual snow and increased after images and floaters) and tinnitus and everything improved by 75 % (except the floaters which never go away), but dont forget: It took 7 months to really see great improvement and each month I am improving!
I felt like fainting and this symptom is gone,too. The pain was unbereable, I thought I was going to die and the doctors couldn't find anything! I had every test under the sun, even Lyme disease tests and nothing was found. And this miracle vitamin simply improved it all and I hope to be 100% one day. But 75 % is enough to lead a normal life. The pain is in the background and i barely notice it. now .
I DO believe that most cases of fibromyalgia are misdiagnosed and they are actually Vitamin D deficiency cases. I also had symptoms like muscle twitching, vibration sensation all over my body, burning and stinging sensation which are mostly gone. My nervous system was falling apart.My initial VItamin D level 9 months ago was 16 ng/ml, so I can't say I had osteomalacia ( it wasn't low enough to cause damage to the bones). I think it is something that affects the nervous system rather than the bones and it isn't well understood by the medical community. I think Vitamin D directly affects the brain.
PLEASE DON"T GIVE UP! IT really takes 6-7 months to really feel better. If you give up, the Vitamin D levels drop really fast and you will never know that Vitamin D deficiency was actually the real cause of your strange and horrible symptoms!
It really gave my life back. I wish you all the best. Ioana
I also found out I was deficient in Vitamin D. Some of the symptoms were chest pain/tightness (felt like i was having a heart attack), difficulty breathing correctly, headaches, dizziness, muscular and bone pains throughout. I was tested with a level of 14. After taking 10,000 iu per day for 6 weeks some of the pains have gone away. I was retested last week and my levels are at 80 which is considered optimal. Now I am worrying that I may have something else bothering me since I am not 100% yet. Ive seen so many specialists and I am at my wits end with this. Nuerologist next week for headaches/dizziness and Gastro to see if my pains are related to that. I am currently reducing my intake to 5,000iu as my doctor said that the headaches and diziness may be attributed to taking so much vitamin D. Still working on figuring out why I am still getting chest pains but I am thankful it is not as bad as it used to be.
Hmm I don't think I was getting a sick feeling from Barrets but there was pain in the stomach and burning in the esophagus. I quit taking antacids because I was getting lots of side effects. Now I use more natural remedies like herbs etc. I do a blood work every 3 months and my b12 levels seem to be alright as well as everything else. Yes, D3 is a prescription medication in Austria. I have to say I'm really really happy that there is a very good public health care here because if I had to pay for all those tests that I've done in the past couple of years, it would have cost me at least 10 000€.
Did you ever get heartburn, or "sick feeling in your stomach" before diagnosis fo barrets. ANTACIDS will lower your vit deficiencies as well, especially b12, since it needs intrinsic factor in the stomach to absorb, have you been checked for other vit deficiencies? D3 has been proven for a while to be the natural form of vitamin d. So continue taking that. IS D3 a prescription in your country? in the USA its as common as candy, though expensive candy. but amazon will mitigate the costs.
Oh yeah and I forgot to mention that I also got my eyes checked multiple times and all the results were fine.
OK guys so after reading dozens of your stories I decided to finally post mine.
So my ''adventure'' with Vitamin D deficiency started in 2007 when I was 19. That's when I first started getting symptoms. First thing I noticed was nerve pain in both of my elbows. I didn't make much of it because I was lifting weights at the time so I was convinced that it must be from the workout and I just over trained myself.
Even though I stopped working out, my hands were getting worse. The nerve pain in elbows was followed by severe muscle pain in forearms and numbness in both hands at night. About a month later I started feeling slightly better and some of the pain seemed to gone away. But I had to stop working out because every time I did, the symptoms would come back.
I went to 3 different orthopedists in the meantime and they all told me that it's probably from lifting weights and should go away.
About a year later I started noticing that my symptoms were getting a lot worse when I didn't get a lot of sleep. Plus I started getting anxiety attacks.
Then in 2011 things started to get really really bad. New symptoms I started experiencing were:
- nerve pain in my feet
- pain in the legs
- muscle weakness in both arms and legs
- eye pain, especially when looking to the left or right
- light and dark circles flashing in the corners of both eyes when looking left or right
- vision problems (vision in my right eye has decreased about 25%)
- blurry vision and eye focusing problems. Especially when scrolling down webpages or watching films where the camera moves around fast. It's like the eyes can't track fast moving objects on the screen anymore and everything becomes blurry.
- image starts to shiver a little bit and I see ''stars'' when focusing on a particular object for too long
- pain in the back of my head
- mouth and eyelid twitching
- anxiety, depression
- burning skin sensation in random places
- constant tiredness
- problems falling asleep
- heart palpitations
- joint pain
- back and neck pain
- electrical type sensation on my back
So I started panicking A LOT and immediately went to the best neurological clinic in town. I had about 5 different blood tests done, 3 MRI scans from head to toe. Plus about 4 different muscle and nerves test. Of course in none of the blood tests my Vitamin D levels have been checked.. So after all this, they said they found nothing and told me that I was healthy as a horse and the symptoms might be depression related which I didn't believe at all and it really pissed me off.
So I was totally desperate and decided to talk to my GP as to what to do next and miraculously he had a theory that it might be Vitamin D deficiency. He ordered a blood test, and BOOM! There it was! My level was 14.
He prescribed Oleovit D3, 40 drops once a week after a meal (I have no idea how many units is that) Of course after the diagnosis I started exposing myself to sun a lot more often and after about couple of weeks I started to feel better. About a year later I got my level up to 44 and most of my symptoms except for the light flashing in the corners of my eyes have disappeared and I even started working out again.
And then in 2013 I was diagnosed with Barrett's esophagus which requires you to take anti acids. Little did I know, anti acids weaken body's ability to absorb Vitamin D and you have to take twice as much so 3 months later all of my symptoms started coming back. It took me another 3 months to connect the dots and find out the correlation. So I upped my dosage and now I'm kinda starting from scratch again.. My current level is 35
If I had to make a pick I'd say the vision problems annoy me the most right now but since I know the cause I'm trying to stay positive and be patient. It is hard though.
I'm hoping to get a lot of sun exposure this summer because the last one was pretty bad.
Also I want to point out to all of you who take D2 that in Europe they don't prescribe that anymore as it's proven to be not nearly as effective as D3. So I would really recommend you switch to D3.
I want to thank all of you guys for sharing your stories and symptoms and I'm really really glad I found this post.
I wish you all the best and I will definitely post a recovery story once this nightmare is totally over.
Stay strong!
So my ''adventure'' with Vitamin D deficiency started in 2007 when I was 19. That's when I first started getting symptoms. First thing I noticed was nerve pain in both of my elbows. I didn't make much of it because I was lifting weights at the time so I was convinced that it must be from the workout and I just over trained myself.
Even though I stopped working out, my hands were getting worse. The nerve pain in elbows was followed by severe muscle pain in forearms and numbness in both hands at night. About a month later I started feeling slightly better and some of the pain seemed to gone away. But I had to stop working out because every time I did, the symptoms would come back.
I went to 3 different orthopedists in the meantime and they all told me that it's probably from lifting weights and should go away.
About a year later I started noticing that my symptoms were getting a lot worse when I didn't get a lot of sleep. Plus I started getting anxiety attacks.
Then in 2011 things started to get really really bad. New symptoms I started experiencing were:
- nerve pain in my feet
- pain in the legs
- muscle weakness in both arms and legs
- eye pain, especially when looking to the left or right
- light and dark circles flashing in the corners of both eyes when looking left or right
- vision problems (vision in my right eye has decreased about 25%)
- blurry vision and eye focusing problems. Especially when scrolling down webpages or watching films where the camera moves around fast. It's like the eyes can't track fast moving objects on the screen anymore and everything becomes blurry.
- image starts to shiver a little bit and I see ''stars'' when focusing on a particular object for too long
- pain in the back of my head
- mouth and eyelid twitching
- anxiety, depression
- burning skin sensation in random places
- constant tiredness
- problems falling asleep
- heart palpitations
- joint pain
- back and neck pain
- electrical type sensation on my back
So I started panicking A LOT and immediately went to the best neurological clinic in town. I had about 5 different blood tests done, 3 MRI scans from head to toe. Plus about 4 different muscle and nerves test. Of course in none of the blood tests my Vitamin D levels have been checked.. So after all this, they said they found nothing and told me that I was healthy as a horse and the symptoms might be depression related which I didn't believe at all and it really pissed me off.
So I was totally desperate and decided to talk to my GP as to what to do next and miraculously he had a theory that it might be Vitamin D deficiency. He ordered a blood test, and BOOM! There it was! My level was 14.
He prescribed Oleovit D3, 40 drops once a week after a meal (I have no idea how many units is that) Of course after the diagnosis I started exposing myself to sun a lot more often and after about couple of weeks I started to feel better. About a year later I got my level up to 44 and most of my symptoms except for the light flashing in the corners of my eyes have disappeared and I even started working out again.
And then in 2013 I was diagnosed with Barrett's esophagus which requires you to take anti acids. Little did I know, anti acids weaken body's ability to absorb Vitamin D and you have to take twice as much so 3 months later all of my symptoms started coming back. It took me another 3 months to connect the dots and find out the correlation. So I upped my dosage and now I'm kinda starting from scratch again.. My current level is 35
If I had to make a pick I'd say the vision problems annoy me the most right now but since I know the cause I'm trying to stay positive and be patient. It is hard though.
I'm hoping to get a lot of sun exposure this summer because the last one was pretty bad.
Also I want to point out to all of you who take D2 that in Europe they don't prescribe that anymore as it's proven to be not nearly as effective as D3. So I would really recommend you switch to D3.
I want to thank all of you guys for sharing your stories and symptoms and I'm really really glad I found this post.
I wish you all the best and I will definitely post a recovery story once this nightmare is totally over.
Stay strong!
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