I have thought about writing about his story, but I don't have the time to sit down and write everything out right now, lol. I guess I could take my blog and print it up and publish it. When TJ was born I had several blogs going and condensed them into 1 on blogspot. As far as I know TJ is the only baby in the world with both EHK and Down Syndrome. I haven't read or heard of another baby ever born with both disorders.
These days I get ppl thinking both boys are twins, lol. Today hubby and I were at the store and 3 or 4 ppl thought they were twins, and when I told them nope they are 16 months apart they were pretty stunned, :)
Hi Cindie!
Wow, what a story! Have you ever thought about writing a book about your journey? (I say this because I am currently writing about ours, and I have published a book already.) Now, while for the most part, Hunter's entrance into this world was mostly unremarkable, and his medical issues quite minimal (An original 8mm ASD which has closed to 2mm in 6 months) I still decided to write about us. I think your adventure would definitely be worth writing about!
In any case, welcome to the site!! And please - post as often as you can!! Brags are important!
Sandi (Dragon1973) Moderator