I have had Tylosis for the past 17 to 18 years I guess I am type A which is where a person has had it prior to the age of 15 years old. The treatments mentioned such as Sailcylic Acid and Fleitol are some of the best treatment I know about on the current medical market. I was due to start a course of Roacutaine but due to the doctor leaving the hospital I was attending at the time this option is no longer available to me. However I have read up on the side effects of Roacutaine and the side of effects of the treatment especially if you are a woman of child bearing age out weight taking this course of treatment. Finally, I have read that I am 95% likley to get cancer by the time I am 70, i guess I know wondering if there is any point in paying for a pension. My condition is each day grows worse, the pins and need basically render my legs without feeling. I am now asking what can I do to get further test done and what are the test that are available.