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Neurocardiogenic Syncope

Could you please help me understand the following results of a holter monitor.

Underlying sinus rhythm is present with the rate ranging between 49 to 132 beats per minute, averaging 70 beats per minute.  Ectopic arrhythmias were extremely rare, consisting only of eight multi-focul PVCs and 14 supraventricular premature beats.  There were no significant morphologic abnormalities.  Asymptomatic Study.

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A related discussion, neuro cardiogenic syncope was started.
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A related discussion, Neurocardiosyncope was started.
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A related discussion, Syncope episodes was started.
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Yes, I was diagnosed via a tilt table test.  I passed out in the first 20 minutes.  They also did the holter monitor and several other tests.  

I had my first child last year and did not have an episode.  I also have not had an episode since.

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AJG
My brother was just recently diagnosed with Neurocardiogenic Syncope. He used to think he fell asleep during his "blackouts" and when he went to the doctor some years ago, they diagnosed him with narcolepsy.  He even went to a sleep clinic. He would drive home and fall asleep and even fall asleep in drive-thru's at fast food restaurants!  Finally about a month ago, he started blacking out and waking up on the floor after having fallen and injuring himself. This even happened while he was at work.  After my mother took him to the doctor, they diagnosed him with this N.S.  The doctor put him on this medication which I can't remember the name, but he says it is making him sick. He says he sometimes during work has to go to the bathroom a few times a day because he thinks he's going to get sick. He said he'd rather not take it. He said it is the lowest dosage of this medication there is.  I just am so glad we know what this is and he just is not falling asleep as he could have seriously hurt someone or himself when these blackouts occurred.  I'm just curious if there are other medications he can explore other than the one he's on that would not make him as sick.
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AJG
My brother was just recently diagnosed with Neurocardiogenic Syncope. He used to think he fell asleep during his "blackouts" and when he went to the doctor some years ago, they diagnosed him with narcolepsy.  He even went to a sleep clinic. He would drive home and fall asleep and even fall asleep in drive-thru's at fast food restaurants!  Finally about a month ago, he started blacking out and waking up on the floor after having fallen and injuring himself. This even happened while he was at work.  After my mother took him to the doctor, they diagnosed him with this N.S.  The doctor put him on this medication which I can't remember the name, but he says it is making him sick. He says he sometimes during work has to go to the bathroom a few times a day because he thinks he's going to get sick. He said he'd rather not take it. He said it is the lowest dosage of this medication there is.  I just am so glad we know what this is and he just is not falling asleep as he could have seriously hurt someone or himself when these blackouts occurred.  I'm just curious if there are other medications he can explore other than the one he's on that would not make him as sick.
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This message is for PDS

it really does sound like you have NCS(neurocardiogenic syncope)a tilt test should confirm it.  Hearing your story was like seeing a printed version of my own.  Keep asking questions but don't get to frustrated with your Dr. if he doesn't have all the answers, this condition is relatively new.  I've met my share of Doctors who still have no idea that it even exists, let alone how to treat it.
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You are very well informed about your health and that is great. This board is very helpful for many.
Did your cardiologist do a tilt table test ?
How low does your b/p run ?
What were your heart murmurs rated at ?
Do you have any cardiac symptoms ?
Any mention of MVP ?
Thanks
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Avatar universal
Hi,
I am a 15 year old male in the Los Angeles area, and I have just returned from a medical appointment with a cardiologist.  He diagnosed me with Neurocardio Syncope, but i'm wondering if that is really what I have.
My Situation:  For about the past year, I have been experiencing blackouts, dizziness, blurred vision, lightheadedness, and occaissional collapsing.  Most of the time, they occur within a minute after I stand up ( and it doesn't matter if I stand up slowly or quickly. ), but they also occur during exercise on occasion.  On the most part, after I stand up(or whatever the case is), I will become lightheaded and dizzy, then I will lose vision partially(seeing stars/spots and blurriness) or fully (seeing black).  Sometimes I will fall down/collapse afterwards.  What seems especially weird to me is that the blackouts are not a full loss of consciousness, for I will remember what happened during them, or at least remember the sounds if I lost vision.  But it is as if I hear them in a delayed fashion, for they do not register in my mind until the blackout is over.  For example, recently, I stood up from my room, walked across the house to my kitchen where my mother was cooking, and blacked out.  I lost vision totally and became dizzy, and fell to my hands and knees.  My mother said "Get up off the floor; you will get your pants dirty."  I heard that during the blackout, but I was unable to respond until afterwards.  Sometimes I will be able to make a partial response, but never a full one if a blackout is in progress.

The Doctor's Diagnosis:  
    When I went to the doctor, first the nurse performed an EKG on me, which came out normal (as one given approximately 8 weeks ago had been).  Then when the doctor came in, he spent about 20 minutes checking various pulses of mine, from my temples to my neck down to my ankles.  He discovered a small heart murmur, but he said that that was insignificant in this situation.  He said that what I most likely have is Neurocardio Syncope.  He gave this description:  "When most people stand up, their heart rates and blood pressures go up...  For you however, your heart rate and blood pressure lowers, causing a shortage of blood in the brain, causing blackouts"  He told me to drink lots of water and make sure to have enough salt.  Also, due to the occaisional collapsing, he prescribed Flourinef to me (.1 mg/day)
     I am being scheduled for a halter and an echocardiogram within the next few weeks.

The doctor seems to be knowledgeable/certified about/with this ( he served as chief of Pediatric Cardiology in several east coast medical centers), but what he says is Neurocardio syncope seems quite different from what everyone else with this condition has.  Convulsions have been very minor (i'm not even sure they could be called that...) and rare in my case, and I have not ever totally lost consciousness.  Also, nothing was ever mentioned about a Tilt-Table test during the examination.  Should I inquire about that?  Currently I'm just looking for confirmation that this is the condition from which I suffer.

Also, should I be doing any physical activities in school with this, if that is indeed what I have?  The doctor said that as long as I don't overexert myself it is OK, but he said don't do biking for some reason.  Thanks for taking the time to read this.  I'll check back here, or I can be contacted through email at  ***@****

Thanks,
PDS
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Avatar universal
When I was told I had Neurocardiogenic Syncope it was after a positive reading on The Tilt Table test , Did you have one ?
Along with holters, ekg as you mentioned.
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Avatar universal
Dear Kim,

The readings you have described are the result of a holter monitor study. Sinus rhythm is the rhythm exhibited by a normal heart.  The heart rate ranged from 49 beats per minute to 132 beats per minute (avg. 70) which is normal. You also experienced a few early beats. PVCs are premature ventricular contractions. These are early beats which originate from the bottom chambers of the heart. Multifocal suggests that they originated from different areas  within the bottom chambers of the heart. You experienced 8 during the holter monitor test which, was likely 24 to 48 hours. This is normal. Supraventricular premature beats also known as PACs are early beats which originate from the top chambers of the heart. You experienced 14 during the 24 to 48 hour holter monitor period. PVCs and PACs have little significance in people with structurally normal hearts. The description you give suggests a normal study.

Thanks for your question,


CCF-MD-KE
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