Hi nancy,
my name is sherald Bridgeman...MY Mother is 56 and is in hospital at the moment, The Doctors have told her she HAS smallfiber neuropathy... Like you she has a burning pain and all the other thing you said... she has been very unwell for the past 6 months they have done every test on earth to find out what it is but came up with nothing.... Monday the 25th of feb they took her in to hospital and yesterday the 2and of march they told her what she had.....Now i am here trying to find out what it is and how it is treated, and i thought i would write and tell you....my e mail address is ***@**** if you want to keep in touch..
Take care
sherald
A related discussion,
small fiber neuropathy was started.
Hi to all- I for three years have been through 12 Dr.'s telling me I have M.S. but not being able to totally prove it. I was finaly diagnosed with small fiber neuropathy.I understand what you all are going through and if you have any questions please feel free to ask. I have , like yourselves been through alot. And maybe I can help. Tamster
Hi to all- I for three years have been through 12 Dr.'s telling me I have M.S. but not being able to totally prove it. I was finaly diagnosed with small fiber neuropathy.I understand what you all are going through and if you have any questions please feel free to ask. I have , like yourselves been through alot. And maybe I can help. Tamster
Hi to all- I for three years have been through 12 Dr.'s telling me I have M.S. but not being able to totally prove it. I was finaly diagnosed with small fiber neuropathy.I understand what you all are going through and if you have any questions please feel free to ask. I have , like yourselves been through alot. And maybe I can help. Tamster
Hi to all- I for three years have been through 12 Dr.'s telling me I have M.S. but not being able to totally prove it. I was finaly diagnosed with small fiber neuropathy.I understand what you all are going through and if you have any questions please feel free to ask. I have , like yourselves been through alot. And maybe I can help. Tamster
Hi Nancy,
Your symptoms sound almost identical to mine which i've had for about 6 months now. I've had routine bloodwork done and thyroid, B12 and everything has come back normal. If you'd or anyone else with these symptoms would like to discuss them please e-mail me at ***@****. I'd really appreciate it !
This is a question for anyone who can answer. I get this weird, creepy crawly, vibrating in my back ribs, does anybody else get that? If you get it , do you know what it is and why you get it? I am getting it alot right now and it is driving me nuts!
Routine lab tests should have been done including thyroid testing to make sure all treatable medical conditions have been properly ruled out. If you are having palpitations, extended rhythm monitoring may be indicated as an EKG can sometimes miss cardiac rhythm problems as it is merely a snapshot of one instant in time. Autonomic disorders are also a possibility as you describe some kind of sweating sensation and palpitations, alkthough it is not the typical presentation. The workup sounds fine. An uncommon disorder that has been gaining recent attention is mitochondrial disease. The mitochondria are the power cells of your body that can lead to a complicated medical picture with various symptoms if abnormal. SOme syndromes are manifested as hearing loss, muscle aches/weakness, and cardiac problems. They are evaluated with serum and urine amino acids, lactic acid, pyruvate levels, and most definitively by muscle biopsy. Talk to your doc to see if that's a possibility. Unfortunately, I haven't seen you personally, so it's a bit of a shot in the dark based solely on your reported symptoms. GOod luck.
Hi Nancy. Our symtoms are almost EXACTLY the same with the exception of the tinnitus. I also have twitches and other neuropathic sensations you describe, atypical migraines, and recently palpitations. I am 41. Please write. ***@****