I have been treated for Myasthenia Gravis for about a year. I started out taking Mestinon (pyridostigmine), Cellcept (mycophenolate mofetil) & Immune Globulin Infusions (IVIG). My neurologist had me stop taking the Mestinon because he said at some point that drug would make my symptoms worse. I had taken prednisone when I had cancer and could not take it without having horrible side effects. Personally, I do not like long term treatment with steroids when there are other drugs available. I had been having a lot of back pain; like I had a slipped disk. My neurologist had been giving me an epidural steroid injection every visit. I had remembered a drug called Baclofen and asked to try it. It has been a miracle drug for the pain I have associated with my MG. I realize everyone is different; but wanted to share. Pain is usually not a hallmark with MG; but people do have pain with it. It should be addressed with your neurologist and your neurologist should give your complaint thoughtful concern.
husband started with eye problems 3 years ago could not get diag...stacked vision...dripping eyelud 1 year ago..mfalling..diff. chewing swallowing breathing...does have sleep apnea...2weeks icu....ivig caused end stage renal failure..now diag. with Chf....CANNOT GET HOLD OF DEBILITATING BODY CRAMPS....MEDS ARE...MESTINON..CELLCEPT...COREG...PRED...SENSIPAR...MANY OTHERS
Hello.
The medicines that you are taking may not work for a long time. They lose their effectiveness after some time. This looks to be the case here.
In such a situation, a thymectomy is considered. Do you have a thymus tumor ?
Regards