medallary sponge kidney vs. IC

[lonnie1973]

I have Medallary sppnge kidneys but also have the symptoms of IC  I have had 4 cystoscopys in the past due to kidney stone retrieval but all have been negative for IC.  Do you have any suggestions?

[MSKshelly]

HI I have IC and MSK, (Medullary Sponge Kidney Disease) actually I have met quite a few people with both conditions.  If you would like to pm me I would be glad to talk with you about the differences in the symptoms, since at first this was very confusing to me as well. Now I know enough to know which symptoms cause what etc.

We also have an MSK board on medhelp.  If your not a member I would encourage you to come and join us, again there a several of us with both.

http://www.medhelp.org/forums/show/256

Shelly


Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis

[David A Burks, MD]

Hi,
You didn't give me your symptoms so I'm now sure whether you have IC or some other problem with similar symptoms. Its unclear whether they did a hydrodistention at the time of the cystoscopy to possibly see the bladder lining changes of IC.  I don't have enough detail here to give you my impression.  You need to see a doctor that specializes in IC and get a correct diagnosis.  That is the first step in getting the right treatment.  Good Luck