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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11844) questions
Just wanted to take some time to say a few things I’ve learned through my journey with chiari. It’s been a bumpy and trying road fille...
My symptoms the lightheaded feeling, shortness of breath, and just feeling really unwell and disconnected are getting worse.. Is this sig...
On January 22nd, 2019 I had decompression surgery. The neurosurgeon specialized in Chiari Type 1 procedures and I completely trust him. I...
I just stopped in to wish you a Merry Christmas and to thank you for your replies. Toolmaker
Hi all, I was incredibly blessed about a year ago to join this forum and to find a TRUE Chiari Specialist who did my decompression surge...
Hi, My GP has ordered a sleep study because I've complained of fatigue. Doctors look at me with 'that look' because nothing has ...
I am 56 and have Chiari. I have just recently started feeling flushing, sometimes with tingling, in my face. It is very sporadic. I know ...
Hi all, please wear your purple January 7th, to help spread awareness and show support for our friend as she heads in for other surgery. ...
I have a 17 year old daughter diagnosed with chiari I after severe migraines, balance issues, seizures, etc. Had decompression surgery w...
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their na...
Most of us here are the ones who have to live with the affects and effects of Chiari Malformation. But some are here because at least at ...
Hey guys i have dysautonomia not POTS specifically but very similar. My pco just told me that having decompression surgery can actually w...
I know this sounds weird but does anyone elses neck click and grind? I have neck pain anyway with the chiari but my neck needs cracking ...
I have been with weird symptoms ranging from eye, to balance issues to weird heart rate and blood pressure spikes. Dr adada at cleveland ...
Hey, I’m 20 and had surgery 6 years ago. Helped hugely but never got rid of symptoms completely. Past couple years symptoms have started ...
Hello Ihave congenital hydrocephalus with vp shunt And now im suffering headache every day , back and shoulder pain , arms pain , dizz...
I had surgery August 30th 2017 my body rejected the plate so they had to take it out I'm still not got a plate all my symptoms are back t...
Dr Vorster spoke at the conference last year about the pitfalls, dx and treatment of Chiari Malformation. He sounds like a nice guy and a...
Hey, im currently 25 and 4-5 years ago i started to have a bunch of crazy symptoms going to a bunch of specialists. My vision is deff g...
Our daughter is 3 1/2 years old. She's been dx'd with Right Coronal Craniosynotosis (CVR and FOA to correct at 10 months), PFAPA (T&A see...
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