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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11855) questions
I started having my first symptoms back in 2004. One thing that was specific about that year was I was in a terrible car accident tha...
My symptoms the lightheaded feeling, shortness of breath, and just feeling really unwell and disconnected are getting worse.. Is this sig...
3 months post op and 1 month ago diagnosed with a pseudo. I’m guessing it’s small but I have a very painful lump at the top of the incis...
I have a permanently clicky gratey neck, just as described here, moderate but permanent duzziness, occasional pressure in ears, no heada...
I was diagnosed in May 2012 with Chiari Type 1 Malformation with a herniation of 6mm. I have horrible migraines, constant pressure in the...
Does anyone with chiari get dizzy even when sitting.I seem to get dizzy and lightheaded just sitting in a chair . I have also had a lot o...
Hi all. I have been having this strange sensation sometimes when I sit still or lay down. It is like fluid fizzing or gushing in the bac...
Sorry for another question! Just wondering what everyone does when the pain gets too much and medication isn’t improving it? I been at a ...
Hi! I've recently been checking my pulse etc on a pulse oximetre and noticed that my sPo2 is rather low. My pulse usually lies aroun 50-6...
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality drastically. Ha...
I was wondering, if anyone else has problems seeing black shadows now and then.. they aren't "floaters" it's more like.. a flash of light...
Any one developed MRSA infection in wound after Chiari Decompression?
I have been decompressed 2 times (in 2014). Both times the dura was opened and I had a c1 laminectomy as well. My headaches never fully...
I know this topic has come up before but I’m curious about the internal itching I had the dreaded incision itch the first time but thi...
Hey All - I am having some serious issues with my legs and don't know whats going on. I don't have a diagnosis but am working with a few ...
Hey all , To those of you out there who have a TENS UNIT, Does it help ? and where did you get it? Make and model cost???? ANY feedbac...
Hello all. Like many of you I have Chiari along with headache pain and intense head pain when straining. I have just been told that I nee...
Not sure if my severe shoulder pain will go away as the nerves settle or perhaps never. Thoughts?
Hey guys, it's been awhile since I have been around... haven't been doing so well, having a hard time dealing with things... but, I was j...
Just wanted to take some time to say a few things I’ve learned through my journey with chiari. It’s been a bumpy and trying road fille...
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