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Chiari Malformation Community

Please read this message before you post! This is a good place for info and comfort. If you are here, then you, or someone close t...
Firstly, no I’ve not been tested for any connective tissue disorders. It seems around here Doctors still don’t have open minds about CM. ...
Had chiari decompression almost 24 years ago (April 9, 2001). Last MRI after a car accident showed ectopic nerve. I have had a racing hea...
Hi. I am 22 and am getting a chiari decompression surgery within the next year hopefully. I am a little anxious about the surgery as I ...
I was told straining my neck wouldn't make it worse . Do you say is that true? I know it's been a long time. I have a C2 Syrinx. Posttrau...
Hi I'm Tiffany. I have a C2 Syrinx. Posttraumatic SCI. I got a Laminectomy to try help symptoms. My surgical site got infected, so they h...
Hello, My daughter is diagnosed with Chiari type1 and she has cyrinx also, a long one about 10cm long and 1cm wide. I am in Los Angele...
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