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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis.
Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone.
I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything.
I know there are a lot of us out there.
Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support.
OUR MOTTO IS:
"we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Questions
Hi everyone you can introduce yourself on this thread.
What brought you here, how long you have been waiting for a diagnosis and a li...
Hello to ALL my limbo friends & family.
I finally have a brain mri w/wo contrast scheduled for this Wed.Nov.14. It has been a year and ...
Good morning all,
Today after some deep research and posting in the Lyme forum. I want to say I believe I have lymes. The sxs fit, and...
Hi all,
I went to my doc yesterday. He wants to send me for a sleep study as we were discussing my fatigue issues. Is this a common s...
Hi,
I was told to make sure when I join the forum to give everyone here a shout out. So, here it goes. Hiiiiiiiiiiiiiiiiiiiiiiiiiiii...
I don't know about any of you, but I have been working on not talking about anything regarding my neuro issues for at least the past 3 mo...
First off thanks to everyone who has shown support this week. Next today I called to find out blood work results. They said nothing has c...
A list of national and international resources and hotlines to help connect you to needed health and medical services.
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