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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis.
Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone.
I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything.
I know there are a lot of us out there.
Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support.
OUR MOTTO IS:
"we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Questions
Hi everyone you can introduce yourself on this thread.
What brought you here, how long you have been waiting for a diagnosis and a li...
Hi,
for those of you celebrating this week, have a Happy Thanksgiving!
I hope you have a peaceful day!
Love Jibs
This is my first time posting in this forum! I am trying my best to "survive limbo land" and today wasn't one of my best days.
I am in...
Hi All,
I know I have been AWOL but I think of you all often..I have been fighting fatigue lately..I wanted to send a hug message to e...
Hi,
I have been feeling the trembles. My hands shakes. My mood is sadness. My attention span is short. As a footnote, I am an adve...
Hi,
Can someone tell me if spastic hands and feet attributeable to neuro. I mean I have been having some very painful spastism in my ...
Hello everyone, and I apologize if this has been covered in other posts, but I haven't read through all of them. What interested me in th...
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