Waldenstrom's Macroglobulinemia Community

This patient support community is for discussions relating to Waldenstrom's Macroglobulinemia, non-Hodgkin lymphoma, monoclonal gammopathy of unknown significance (MGUS), multiple myeloma, and plasmapheresis.

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1 - 12 (of 70) questions

Bone Marrow Biopsy now clear. What now?

MimiLila

What does it mean if WM is treated and then BMB test is clear?

My father had Bing Neel from his WM - what now?

MimiLila

Bing Neel has now been cured but he is left extremely drowsy and with trouble eating. Weak, bedbound and at times whe has hypoactive deli...

Polyclonal gammapathy but Igm is high. Elevated kappa free light chain

Ravi2012

Hi, I am a 30 yrs old man. I got exposed to toxic chemical fumes (possible carcinogens) for 30min ~ 4 months ago. I developed (a) frontal...

1 answer

Waldenstroms Maccrogolulinemia Leulemia

johnnywilliam

need help to where is effects. Right now its attacked the nerve ending s in my arms and the pain is horrible They have me on pregnisone, ...

finger turns black

sueraud

my middle finger felt very tight (like its swelling) when I looked at it it had started to turn black.the next day the whole finger turne...

80yr with WM?

michniak

Anyone here to discuss?

Ibrutinib

MrsDoubtfire49

I received Velcade/Rituxan/Dex in 8/2011 as my chemo regimen. It looks like I will be going on maintenance. I need some feed-back, pleas...

Rituxan - Danger

Tatters

I have been treated withRituxan for some time. So I was surprised when I heard on CNBC this morning that this drug was found, according t...

7 answers

Hyperviscosity/fingers and toes turning black

claugh

My father has recently been diagnosed with Waldenstrom's, or I should say the docs are mostly sure that is what he has. He is currently ...

4 answers

lab tests, concerned for myeloma, waldenstroms and mgus

aisle_b

I recently had some routine blood tests done. The Dr. did not seem concerned, but I noticed some abnormal results. I also have been havin...

MGUS: SERUM PROTEIN ELECTROPHORESIS TEST

Sharon2001

In April 2008, I was diagnosed with a monoclonal protein of 0.2 g/dl. The diagnosis was made by a rheumatologist checking for possible Sj...

3 answers

What does these labs indicate?

betsyboo79

I started out researching renal failure but my labs keep leading me to multiple myloma. I am in stage 3 renal failure that was found on ...

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VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

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