FINALLY a name for this. PHANTOSMIA. I found some links regarding this when I did a search for olfactory damage since I had a cat-scan done and the ENT specialist said that although the scan did not show anything - that it sounded like my past illness had caused some olfactory nerve damage. There also has been some mention of possible damage being caused by certain medications. I am going to talk to ENT again regarding possible surgical solution to this since I have seen some info on this being successful before. This is becoming unbearable at times and even makes my eyes sting. I am SICK of putting Vicks Vapo-rub under my nose in order to be able to sleep a night. Have gone through a round of Cipro - but it has not helped. Has actually gotten worse lately. My best hope at this point seems to be prayer - but will still keep checking on medical options also. Please let me know if you have any new info. ***@****
I FINALLY found a name for this. PHANTOSMIA. It seems to be olfactory nerve damage that can cause phantom smells (smells without a physical source) such as rotting flesh, smoke, or some other unpleasant smell. This seems to be a connection to viral infections, some medications, or sometime less frequently neurological reasons as a possible source for this condition. I have seen an ENT specialist and had a cat-scan which did not show anything out of the ordinary - but the specialist said he thought that I had suffered nerve damage which could take months and possibly up to a year to heal - if it ever did heal. Some mentions of possible instances of surgical solutions without loss of sense of smell - but not sure how proven this path is. My case seems to be getting worse - have finished a round of Cipro - but no improvement. Have tried sudafed / Claratin / codeine cough syrup (some relief the following day for a few hours at most). I also have been battling a case of Thrush (a fungal infection of the tongue / throat) for almost as long as the smoke smell (a result of the Prednisone) taken while sick.
Hope this helps. Write me at: ***@**** if you want to discuss further or have any news to share. Thanks - Maggie
Sorry for the almost duplicate posting - not sure why I was unable to view it after the first posting - so I resubmitted with a few changes.
for the last 6 years or so I have been getting these phantom smells .. but not smoking.. weird stuff like wet cement, the smell of baking,some unknown medicine.. sometimes they'll last for 6 months other times they're gone in a week. I have noticed them less often in the last year. My doctor thinks I'm nuts... I know what I smell. I don't have allergies of any kind and I'm in excellent health and I can learn to live with the smell of fresh baked bread in my nostrils.. I mean it could be owrse.. still I think I should get someone to check this out especially as I read about Phantom smells being a possible side efect of brain tumors...
well i had an mri and it showed nothing. sometimes i think it's supplements i'm taking and other times i'm not sure. didn't have it for a while and now it's back again. sometimes i get eczema around my nose area and i think it's that. most times it starts in my office where they used to smoke inside and now smoke outside. but as long as i don't have a tumor i'll live with it.
I have been experiencing the smell of smoke for about one year now. I noticed it when I was lying down at night before I went to sleep. I thought the neighbour was smoking but everytime I'd go to the window to check, there wasn't any smoke smell coming in. Then I'd lie down and it would come back. I figured it was smoke coming through from the floor above (although I knew the folks upstairs didn't smoke). It didn't have a distinctively cigarette, cigar, pipe, food, or marijuana smell but just something I described as "smokey". I don't smoke and rarely do I burn something while cooking. Recently, while travelling I got the smell again when going to sleep, so I knew it was something I was 'carrying' with me. I have since returned home and still get that smell when I'm lying down, even in the day. I don't know if I'm just noticing it more or if, in fact, it is increasing.