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chiari malformation

MY GRANDDAUGHTER WAS DIAGNOSED WITH CHIARI MALFORMATION.  SHE WAS ONLY 22 MONTHS OLD.  SYMPTOMS WERE HEADACHE, ENLARGED HEAD,  WHAT CAN ANYONE TELL ME ABOUT THIS.  SHE HAS HAD DECOMPRESSION SURGERY AND DOING OKAY RIGHT NOW. ALSO I WOULD LIKE TO MAKE PEOPLE AWARE OF THIS.  FROM SOME OF THE MATERIAL THAT I HAVE READ A LOT OF PEOPLE ARE MISDIAGNOSED AND DON'T GET THE PROPER HELP.  SO WHAT EVER YOU CAN READ ABOUT CHIARI MALFORMATION READ IT. SOMEONE MAY GET SOME WELL NEEDED ATTENTION.  YOU CAN SEARCH THE WEB. CHIARI MALFORMATION
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Hi ! I just wanted to let you know that MedHelp has a forum for people who have Chiari Malformation:

http://www.medhelp.org/forums/show/257?personal_page_id=197028
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563773 tn?1374246539
MEDICAL PROFESSIONAL
Hello,

Chiari malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. When the indented bony space at the lower rear of the skull is smaller than normal, the cerebellum and brainstem can be pushed downward. The resulting pressure on the cerebellum can block the flow of cerebrospinal fluid (the liquid that surrounds and protects the brain and spinal cord) and can cause a range of symptoms including dizziness, muscle weakness, numbness, vision problems, headache, and problems with balance and coordination.There are four types of chiari malformation,type 1 being asymptomatic and type 4 the most serious.

For thw website that you have asked,two websites providing excellent information about this is http://en.wikipedia.org/wiki/Arnold-Chiari_malformation and  
http://www.ninds.nih.gov/disorders/chiari/chiari.htm

Hope it helps.Take care and regards.


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