By the way I'm a 27 year old male, I've gained about 60 pounds since this started happening to me simply because any physical activity worsens my symptoms. Health history: I had a benign tumor removed from near my spine when I was 12, I also fractured T11 and T12 in my spine in 2008 when I was 19. Apart from that I had always been healthy.
Never heard of it, looked on the Mayo Clinic website. It says this is usually a minor condition that can be treated usually in a doctor's office by tilting the head in several positions. In the rare cases where this and PT don't work, there's a surgery for it that's 90% effective. But from what I read, the dizziness from that condition isn't constant, and you say yours is. Obviously, people can get rare severe problems where most don't -- it happened to me -- and when that happens, often most docs don't have a clue what to do. Sometimes, if you can travel, places like Mayo Clinic and Johns Hopkins and other places will have someone or a team who specialize in your problem and might find an answer where your local docs can't or won't. In the meantime, have you ever tried the temporary things such as ginger, dramamine, or antivert?