I am sorry to learn of your travails. What a dreadful experience this must be for you and your son.
There are scattered reports in the medical literature of silicone allergy, some of which seem credible but I could find no well-controlled studies. Given the ubiquity of silicone in breast implants, one would expect a fair number of reports if allergy were a problem and there are not. On the other hand, it is conceivably a rare occurrence and so we are dependent on case reports such as the one I have copied below from the website of the American Academy of Allergy, Asthma and Immunology (AAAAI).
I am not an allergist/immunologist and so I recommend that you request of your son’s doctor(s) that they contact the Mayo Clinic or any other large referral center such as National Jewish Health in Denver to consult with an expert who might be able to provide information. Another option would be for you or his doctor to contact the internationally renowned allergist Dr. Phil Lieberman who submitted the reference cited below: http://www.allergymemphis.com/lieberman.html
Another possibility to explain your son’s predisposition to recurrent infection of his ears and sinuses would be some type of immunodeficiency state, a number of which are not rare.
I would be most appreciative of a follow-up message from you regarding the outcome of your attempts to improve your son’s health
Here is the article I mentioned above:
Ann Thorac Surg. 2009 Apr; 87(4):1275-7. Allergy to pacemaker silicone compounds: recognition and surgical management. Oprea ML, Schnöring H, Sachweh JS, Ott H, Biertz J, Vazquez-Jimenez JF.
Source
Department of Pediatric Cardiac Surgery, RWTH Aachen University, Aachen, Germany.
Abstract
Silicone is a widely used biomaterial. Contact allergy, particularly to silicone components of pacemaker coatings, is uncommon. We present a 12-year-old girl with a history of complex congenital heart disease and acquired complete heart block excluding transvenous lead placement. Contact allergy to silicone led to multiple surgical interventions until the etiology for recurrent pacemaker wound complications was discovered. The key to diagnosis was a specific manufacturer's patch test. Complete removal of the former pacing system and placement of custom-made silicone free pacemaker components and epicardial use of silicone free transvenous leads were essential for successful therapy.
Good luck
Is this hyper sensitivity to Silicone as bad as it seems to be on the internet. I know what you can't believe everything that you read, but it seems kind of scary. They can't seem to figure out what is wrong with my son and it has been suggested that this may be his problem.