The floppiness could be in the soft palate or it could be a collapse of the portion of the throat behind the tongue, called the pharynx. If your son truly is having the stridor you describe below, that is indicative of upper airway obstruction, from the vocal cords on up. Two recommendations: 1) that you have your son evaluated by a pediatric ENT doctor, and 2) ask the ENT to decide if your son should have imaging, such as a CT scan or MRI, of his throat to determine the location/cause of his presumed upper airway obstruction. If he has such an obstruction, this could also result in a sleep disorder and, in many instances, this can cause asthma worsening.
The pulmonary stenosis and shunting with desaturation is equally worrisome and he should have another pediatric cardiologist evaluate this. In some instances, surgical correction of congenital heart abnormalities is age related.
Good luck.
Thank you so much for your advice. The pulmonologist took an xray as a first step. so hopefully I can get a refferal to an ENT and have test done.
As far as cardiac, I am going to keep going to one that will listen to me as well as other Doctors
Thank yo again
Michelle