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8214271 tn?1398784144

joining

thank you for letting me join this community
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1530171 tn?1448129593
Hi again.

According to the Sjogren’s Syndrome Foundation 70% of patients have a positive ANA, 70% are positive for SS-A and 40% are positive for SS-BB antibodies.
That means around 30% of them are seronegative (1.2 million seronegative Americans; and 130,000 seronegative Canadians) and you are one of them.
By the way a positive ANA is not considered positive by most Doctors, unless it`s 1:160 or higher.
So, even if the treatment  does not offer the possibility for cure or remission
your  doctors should be made aware of this, so you could get symptom management, appropriate for Sjogren`s.

My personal view is that doctors who treat patients according to Lab results only, are doing a huge disservice to their patients and I think
this model of health care delivery must be seriously addressed.
And it must come from the patients themselves, which means that they must become more knowledgeable and more proactive in their own health matters, in order to address these concerns with conviction.

To answer your question, yes it is likely, but the likelihood depends mainly
on your own phenotype and genotype.
There are a lot of factors that can be influenced, by the choices we make
in lifestyle, diet, fitness and activity, stress management, etc.

Also our gene expression can be manipulated greatly and there`s a tremendous amount of research going on in this field at present.

Should you be interested, I can offer you some recommendations.
Just let me know.

Best wishes.
Niko


Helpful - 0
8214271 tn?1398784144
I have Sjogren's Syndrome, to diagnose I had a positive lip biopsy, a positive Shirmer test and extremely high, SED rates and RA factor. This happened several years ago. My doctor then moved to another state, I have been to several doctors since and they all say that unless my ANA is elevated that I do not have Sjogren's. I keep looking for another doctor that will look at all of the symptoms and reasons why I am a text book SS sufferer but my choices are limited where I live.

With all of that being said my question is once you have an autoimmune disorder how likely is it that another one will pop up?
Helpful - 0
1530171 tn?1448129593
Hi kneeser and welcome to the forum.

Do you have a question regarding a health issue possibly linked to an autoimmune condition?

Feel free to post anytime.

Cheers!
Niko
Helpful - 0
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