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Autoimmune disorder
I was diagnosed with Hashimoto's disease awhile ago. I was put on 150 mg of pulse steroids to help it and then 60 mg of steroids every day for eight weeks. I am having neuropathic pain in my legs from the hip down that is a sharp needle sensation, bad headaches, back pain, dizziness, stiffness in hands,and chest pain and pressure that feels like my chest just caved in. I am also drinking lots of water and I am really dry in the mouth all the time. My lips are always dry also as well as my skin. My contacts don't stay in my eyes because they are so dry. I also have sores in my ears. I also have trouble thinking and remembering and I cannot concentrate. My doctor's cannot find what other autoimmune disorder that is going on with me because of the steroids. I am getting taken off the steroids slowly. I have also just been diagnosed with steroid myopathy. Do you know what I could have? What are side effects of steroids?
Hi Sportynik,
You can eat bread and pizza but it has to be gluten free bread and pizza. GF bread and pizza is available in many stores now. I don't know about desensitization. I know some celiacs get numbness from nerve damage, and other nerve symptoms.
Here are a couple of lupus forums where there might be some people who can help.
The Lupus Site forum:
http://www.thelupussite.com/forum/forumdisplay.php?f=34
Lupus Foundation of America forum:
http://ft003159.fusetalkcommunity.com/index.cfm?nocookies=yes
I did want to let you know that the celiac testing is not perfect. Some people have tests and they don't show anything, but they still get better after going on the GF diet.
If you do want to try it sometime, the easiest thing is to start with a very basic diet of rice and veggies, with chicken or beef, with just salt and pepper. I make big batches of rice on the weekends, and freeze most of it. Then I can take out a freezer bag of rice and thaw it during the week. I have several varieties frozen so I can have different kinds of rice. The reason to do it this way is that you don't have to spend a whole lot of time reading labels in the grocery store, and worrying about ingredients. If you eat a basic diet like this for a month you will probably be able to tell a difference if you have celiac or gluten sensititvity. You do need to be sure to eliminate any gluten, so that means checking all vitamins and medicines for gluten also. Gluten is sometimes used as a binder in pills. McCormick single ingredient spices are GF, but you always need to check the labels. Many celiac people are on gluten free, casien (milk protein) free, and soy free diets. Some also have problems with nightshades, (tomatoes, peppers, potatoes, eggplant). If you do a very simple diet, you can test for reactions by adding 1 new food every other day. Wait a couple days and then if you don't have a negative reaction, add another food. Of course if the added food is causing a reaction you would out it on the bad list. This is a good way to test for food intolerances. It is called an elimination diet, because you add things one at a time and eliminate the ones that cause problems. I used an elimination diet to find out I Was lactose intolerant 12 years ago. So, just something to think about trying.
You can eat bread and pizza but it has to be gluten free bread and pizza. GF bread and pizza is available in many stores now. I don't know about desensitization. I know some celiacs get numbness from nerve damage, and other nerve symptoms.
Here are a couple of lupus forums where there might be some people who can help.
The Lupus Site forum:
http://www.thelupussite.com/forum/forumdisplay.php?f=34
Lupus Foundation of America forum:
http://ft003159.fusetalkcommunity.com/index.cfm?nocookies=yes
I did want to let you know that the celiac testing is not perfect. Some people have tests and they don't show anything, but they still get better after going on the GF diet.
If you do want to try it sometime, the easiest thing is to start with a very basic diet of rice and veggies, with chicken or beef, with just salt and pepper. I make big batches of rice on the weekends, and freeze most of it. Then I can take out a freezer bag of rice and thaw it during the week. I have several varieties frozen so I can have different kinds of rice. The reason to do it this way is that you don't have to spend a whole lot of time reading labels in the grocery store, and worrying about ingredients. If you eat a basic diet like this for a month you will probably be able to tell a difference if you have celiac or gluten sensititvity. You do need to be sure to eliminate any gluten, so that means checking all vitamins and medicines for gluten also. Gluten is sometimes used as a binder in pills. McCormick single ingredient spices are GF, but you always need to check the labels. Many celiac people are on gluten free, casien (milk protein) free, and soy free diets. Some also have problems with nightshades, (tomatoes, peppers, potatoes, eggplant). If you do a very simple diet, you can test for reactions by adding 1 new food every other day. Wait a couple days and then if you don't have a negative reaction, add another food. Of course if the added food is causing a reaction you would out it on the bad list. This is a good way to test for food intolerances. It is called an elimination diet, because you add things one at a time and eliminate the ones that cause problems. I used an elimination diet to find out I Was lactose intolerant 12 years ago. So, just something to think about trying.
Hi finepickle, I am not sure if you can help me or not because this doesn't go really with celiac disease well I guess it can. I was wondering since I have awful neuropathic pain. What does desencitization do to help them? Also with celiac disease can you still eat bread and pizza and other stuff like that?
Thank you for all your help. You have answered a bunch of my questions. I will talk to my doctor's about doing the test panel for celiac disease. If you have any other advice please let me know. Thanks.
Hi Sportynik,
Yep, the diet is a life long thing. It is not bad though, the food is better for you than what most people eat. There are a lot of gluten free foods in stores these days too. I make mostly rice and veggies with some kind of meat. Corn chips are ok and corn tortillas. There are some restaraunts that have GF foods now also.
Yep, the diet is a life long thing. It is not bad though, the food is better for you than what most people eat. There are a lot of gluten free foods in stores these days too. I make mostly rice and veggies with some kind of meat. Corn chips are ok and corn tortillas. There are some restaraunts that have GF foods now also.
Thank you for your help. Ya I have done research and lupus is related to celiac disease. I will talk to my mom about us asking the doctors to do the test panel. My dad has hyperthyroidism and my mom used to but it is fixed, and my aunt has antiphospolipid syndrome and lupus. Do you have to stay on the diet for your whole life if you have celiac?
Hi Sportynik,
Well, surprise! I found another list of diseases related to celiac. This one is from the NIH site National Digestive Disease Information Clearinghouse NDDIC. They include lupus as one of the related diseases!
Please do consider getting a full celiac test panel done. If you do turn out to have celiac, the good news is that it is easily treated by changing your diet. Since celiac is a genetic condition, it is often true that other people in the celiac person's family will have celiac, or other auto-immune diseases. You might want to ask your mom about that. If there is a history of any of the related diseases. In my family two of my uncles had colon cancer, my younger brother had crohn's disease, my dad had diabetes, my sister has endometriosis, and my dog had fleas! Well, maybe that last one doesn't count. :-) It's great that your mom is a nurse, she can really help you a lot!
http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/#8
Diseases Linked to Celiac Disease
People with celiac disease tend to have other autoimmune diseases. The connection between celiac disease and these diseases may be genetic. These diseases include
* thyroid disease
* systemic lupus erythematosus ******
* type 1 diabetes
* liver disease
* collagen vascular disease
* rheumatoid arthritis
* Sjögren’s syndrome
Hey, no you didn't bother me. I am glad to try and help. I had to go 12 years before finding out I had celiac. That is not unusual in celiac. My doctors just didn't think of it. It is slowly becoming more widely known now. But still a lot of doctors don't test people for it when they should.
Well, surprise! I found another list of diseases related to celiac. This one is from the NIH site National Digestive Disease Information Clearinghouse NDDIC. They include lupus as one of the related diseases!
Please do consider getting a full celiac test panel done. If you do turn out to have celiac, the good news is that it is easily treated by changing your diet. Since celiac is a genetic condition, it is often true that other people in the celiac person's family will have celiac, or other auto-immune diseases. You might want to ask your mom about that. If there is a history of any of the related diseases. In my family two of my uncles had colon cancer, my younger brother had crohn's disease, my dad had diabetes, my sister has endometriosis, and my dog had fleas! Well, maybe that last one doesn't count. :-) It's great that your mom is a nurse, she can really help you a lot!
http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/#8
Diseases Linked to Celiac Disease
People with celiac disease tend to have other autoimmune diseases. The connection between celiac disease and these diseases may be genetic. These diseases include
* thyroid disease
* systemic lupus erythematosus ******
* type 1 diabetes
* liver disease
* collagen vascular disease
* rheumatoid arthritis
* Sjögren’s syndrome
Hey, no you didn't bother me. I am glad to try and help. I had to go 12 years before finding out I had celiac. That is not unusual in celiac. My doctors just didn't think of it. It is slowly becoming more widely known now. But still a lot of doctors don't test people for it when they should.
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