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what kinda illness cause this?

My symptoms started 3 years ago. Both feet felt like I has being stuck by pins and needles. Shortly afterwards my knees began to hurt really bad. About 2 months after that, My left arm went completely numb with a band-like feeling and also felt cold to the touch. I went to the ER and had a CT scan and xray of cervical spine (normal results). they sent me home and said I needed a neurologist and a MRI. I went to another Dr and did the MRI (Normal) and bloodwork (lyme, B12, CBC profile, Lupus ect) all normal results. As time AND doctors went on, I began to get very dizzy, had migraines that would last for weeks and fatigue set in.  I also began to feel a fluttering sensation in my chest, and went to a cardiologist, and was placed on a holter monitor, That indicated I had moderate-severe amount of PVC's. But the cardiologist didnt seem worried about that and said everything else looked normal. The symptoms come and go, but usually never 100% go away. Right now the only medication im on is Adderall. Any suggestions to what direction I should take medically speaking?
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Avatar universal
Thanks for that information, I'll call my cardiologist and get a copy of the result, I understand how to read an ECG so i'll take a look, I'll also ask im to take a second look. Im not sure which worries me more, my symptoms or the doctors i've been to. You have been really helpful with the information you've given me
Thanks again!
Helpful - 0
1530171 tn?1448129593
Hey Justmyluck5,
Check at the Fibro Community, a post :Where do I go from here?
Check Phtartist response. She's on of the top A/I answerers as well
with a wealth of personal experience-specially in undiagnosis and misdiagnosis. There are too many false negatives, too many incompetent doctors and labs and very disturbing medical policies and politics!!
You may want to pm her personally. She's very helpful.
I urge you to find a competent LLMD (Lyme Literate Medical Doctor)
and to deal only with IGENEX Labs for any tests-complete Lyme, ,Mycoplasma and co-infections Panel. Contact any local or State or National Lyme Disease Associations to find an LLMD in your area.

Also you may want to check immed.org and Dr. Garth Nicolson who's an expert in the field of pathogenic infections and has been a contributor in this forum. (you can do a search for this using the search engine of medhelp on the top of this page)
Your doctor may not be familiar with the blood volume test, but I'm sure if your blood volume was down by 25% because let's say an injury from an accident, then this would be taken very seriously,right?
Ask the cardiologist to have another look at the wave patterns
or get a copy of it, familiarize yourself with ECG patterns and it will be easy to spot the irregularities. Most Cardiologists don't look for this and has nothing to do with voltage and with normal voltage ranges they miss the
abnormal pattern that indicates that the blood in the left ventricle is not being pumped properly through the aorta for distribution around the body.
You chest pains and symptoms are real, not in your head and there's probably scarring on the heart tissue if pattern is as suspected.
An EMG test-if you get it-must be accompanied by a nerve conduction test
for better diagnostic value, however, abnormal  EMG test results can be caused by any of over 40 different conditions!
You can see why neurological dx is complex and most findings are inconclusive, or only indicative so generalized labels like neuropathy
with all its subtypes are so common. Tough for the Neuros and even tougher for the patients.
I may have repeated some things here, but I did this with the intention to
help you understand a little better some things that are a bit unfamiliar perhaps-some people say it's Gibberish to them even if I try to keep it simple.
Let me know if you need any more details.
Wishing you well and may 2012 be the year you get all your health issues
resolved.
Blessings
Niko

Helpful - 0
Avatar universal
Thank you for your response. I've looked into the blood volume testing. Thats something No doctor has even mentioned to me. I have an appointment with one of my doctors this friday and I'm going to see if he will do that test. I dont know how to go about finding one of those labs you spoke of. I have been tested for Lyme disease 6x and once fo borellia throughout the last 3 years, all negative (if that helps). The cardiologist didnt go into detail about the holter monitor results, just that there was a moderate to severe amount of PVC's.  My neurologist wants to do an EMG in a few weeks, so i'd rather find an alternative test/solution before then. Not looking forward to that.
Helpful - 0
1530171 tn?1448129593
Hey JustMYyLuck5,
Welcome to the forum.
*Did  the ECG Holter test show any T-Wave abnormalities like instead of Peaks, there would be valleys and inversions? Can you possibly find out from the cardiologist? Usually moderate PVCs are of not a big concern.
Magnesium-not serum mg levels- may be deficient.
Look into Magnesium Oil transdermal delivery if that is the case (confirm with mineral analysis-hair analysis is good )
Medically speaking you are up against the medical system unfortunately.
Their priorities are ******up, as their internal politics and corruption are in direct conflict with delivering proper care to you and millions of other sufferers.
Most of the results you are getting are probably false negatives.
My opinion is that you have an undetected systemic pathogenic infection.
To verify this you MUST deal with an LLMD and IGENEX Labs, as most of any other MDs and Labs are not going to be much help to determine anything. A few rounds of this medical merry-go-round and suddenly you're told that all this is in your head. Your symptoms do not exist!!
There are tens of thousands of people in your situation, classified as psych cases and many of them on anti-depression meds.
I urge you not to fall in this. You are young and you deserve to get your
on with your life, healthy and sane!
You may want to ask your cardiologist for a blood volume test.
Average red cell mass to body weight is 30ml/Kg.
(normal range 25ml-35ml/Kg)
If the test shows over 10% less than the lower range it is indicative of an
underlying pathogenic infection.
* This is also indicative of an underlying pathogenic infection and it warrants getting a complete Borellia, Pathogenic Mycoplasma and Co-infection Panel through IGENEX Labs, if T-Wave patterns are irregular as I described earlier.
Please do research all this. Key words: IGENEX, ILADS, LLMD, IMMED.ORG, DR.GARTH NICOLSON
The sooner you get this done the better, as it is easier to treat this possible infectious condition in the initial stages.
Take care and should you have any questions please post again or pm me directly.
Niko
Helpful - 0
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