Foot drop and muscle weakness

[Peggymousa]

Ive had one test for Myasthenia that was positive and one that was negative. There is a family history of foot drop and scoliosis ( not MG) I have got foot drop and muscle weakness but other trsts (CT, MRI and spinal tap ) were normal. Im waiting for NCS and EMG test results. Can anybody advise me on what tests I should get for a diagnosis because after 16 months I am considerably weaker and emotionally drained. Thank you

[TheLightSeeker]

Peggy, I'm doing real good.
I managed to escape the cold  for a few weeks. Went down to Mexico
on the Pacific coast and just came back last week.
Don't ask me why I came back so early.

Sorry to hear that you not doing so well, but I hope after you get your results,that some treatment that works can be implemented.

You could look into a trial supplementation of of Methylocobalamin (neurological form of B12) and 5-MethylTetraHydroFolate (neurological form of folate) which could be deficient in your body and your doctors would not know anything about it, unless a specific CSF Homocysteine test was done. The standard MMA test won't indicate this possible deficiency.
If you feel better within a few weeks of supplementation of these, that would be a strong indicator, that you have under-methylation issues.
(Again, something your doctors wouldn't know anything about).

Keep me posted if you feel up to it!

Wishing you well.
Niko

[Peggymousa]

Hi yes I remember you. How are you? I haven't followed up with the postherpetic treatment because none of the doctors have been very helpful. Having said that I have recently had the NCS and EMG tests and Im waiting for the results. The cold weather has made mobility alot worse and Im continuing with physiotherapy. What about you?

[TheLightSeeker]

Hey Peggy,
Remember me? I responded last year to your questions.
Did you follow up with the PHN (postherpetic neuralgia)  treatment ?

Let me know what happened since that time, when you get a chance.

Cheers.
Niko