Follow this natural immune system boosting method, and let me know how you feel in 4 weeks and what symptom has benefited.Then we can discuss further.
Build up your timing gradually.If you feel tired or dizzy, stop and resume after one minute.
Anulom Vilom pranayam –
Close your right nostril with thumb and deep breath-in through left nostril
then – close left nostril with two fingers and breath-out through right nostril
then -keeping the left nostril closed deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 20 to 30 minutes twice a day.
Children under 15 years – do 5 to 10 minutes twice a day.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.
Bhramri Pranayam -Close eyes. Close little flap of ears with thumb,place index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Repeat this 5 to 21 times.
December 6 ,2011
You could have several issues causing all these symptoms.
You mentioned having every autoimune test done. So I can only assume TPO and TgAb was tested also...?
Ever get Free T3 and Free T4 thyroid hormones tested? Thyroid does effect everything to some extent.
Many of your symptoms are also low thyroid symptoms for many people. Some just have more symptoms than others.
hope this helps
Hey Nikki,
There have been millions -not a typo-millions of people that have been tested time and time again for so-called auto-immune and neurodegenerative (suspected) dealing with all kind of specialists and labs and all results come back negative or inconclusive.
There are a few reasons for this.
1. They are dealing with dealing with doctors who are NOT experts in Pathogenic Mycoplasma and Borrelia type of infections.
2. The Doctors are afraid of being "blacklisted" for breaking policy (IDSA is very powerful and dictates the policy) and potentially messing up their careers.
3. The labs are not able to handle the specific tests or the wrong tests are ordered, or the results are wrong most of the time (which is more common!)
If you want to get a Dr. House type of dx and treatment you must deal with experts.
You are not the only one who has similar histories.
Go to ILADS, immed.org,-check with Dr. Garth Nicolson the top expert in this field, find an LLMD specialist and insist to deal with IGENEX Labs as they are one of the few and best reference labs in the world.
These infections are extremely difficult to detect. The pathogens hide within cellular membrane matter, disguising themselves as normal cells and hiding from the immune system and tests.
If you have any questions please post again.
Take care.
Niko
Thanks or posting
Msnova ; I have been tested for ANA. .. all if that specific antibody tests for lupus like DS DNA etc. Had a sarcodosis antibody test. .. the entire panel twice for any rheum disorder plus all the specialized individual tests. Jo 1 for myositis ... RA. ....
All was negative ..... my Dr did think i had sarcoidosis. As well as SLE.
Jihads one DR tell me that BC of how strongly positive my LA test was thy it alone indicated I have SLE. Which is not true. ...
So my Dr is now down to asking things like ' is there ANYTHNG is your history thy we don't know?"
And my favorite so far. .." any family historyof sudden unexplained death t a young age? "
The onlything that makes sense to me is that the hide dose prednisone I was taking when i had my tests screwed up the results. I have heard that can happen
Hey Nikki,
CLINICAL CONDITIONS ASSOCIATED WITH LUPUS ANTICOAGULANT
- capitalized as this is the key-
They are classified in 5 categories and (17) total possible individual connections.
1. Auto-immune (3)
2. Drug exposure (5)
3. Infections (3)
4. Lymphoproliferative Disorders (3)
5. Miscellaneous (2)
(from Hematologic Pathology on Lupus Anticoagulants)
LAs are wrongly named as such. It occurs in 25% of Lupus -as mentioned in the previous reply and the Anticoagulant part of it is actually the opposite. In vivo it is a coagulant!
They are specific antibodies-immunoglobulins-whose job is to detect, tag and sometimes neutralize pathogens.
Immune system inefficiencies and weaknesses combined with the presence of difficult to detect low grade infectious pathogenic infections renders the LAs function incomplete.
The lack of proper diagnosis, has allowed clinical implications and inefficient lab diagnostics to stray away from the real underlying issue.
Look for an infectious disease specialist who has the LLMD designation.
All above listed associations are possibly connected with very hard to detect pathogenic infectious conditions-for the immune system and medical doctors alike. Go to immed.org for more info.
Your multi-systemic symptomology is strongly suggestive of such conditions. Also due to their opportunistic nature their onset growth may coincide with triggering events such as traumas, illness, vaccinations, injuries etc.,that would explain the peaks and valleys with your symptoms.
There are other secondary factors and cofactors, however, difficult to distinguish from consequential structures.
Wishing you well,
Niko
A study on 500 lung biopsies found 58% (290/500) of pulmonary granulomas were most commonly due to sarcoidosis (136, 27%) and mycobacterial or fungal infections (125, 25%). In 42% of cases (210/500) no cause could not be determined.
Calcified granulomas are seen in conditions such as berylliosis, syphilis, sarcoidosis, Crohn's disease, tuberculosis, Churg-Strauss syndrome, and Wegener's granulomatosis. Conditions that list both granulomas and pulmonary vasculitis include Churg-Strauss syndrome, Wegener’s granulomatosis, Necrotizing sarcoid granulomatosis (NSG) - a variant of sarcoidosis. Night sweats and joint pain are listed under all these conditions.
One third of sarcoidosis patients have an enlarged liver. Tuberculosis, Berylliosis and Wegener's granulomatosis also list an enlarged liver as a symptom.
Some of your symptoms can be explained by your current lab findings.
Potassium levels may become depleted if hot flashes or night sweats occur frequently as potassium is lost through perspiration.
Symptoms of potassium deficiency include:
May have no symptoms
Weakness
Muscle spasms, twitching and cramps
Irregular heartbeat
Excessive fatigue
Hair loss
Constant thirst
Backache
Skin problems
Tooth decay
Fluid retention
Cold hands and feet
A tingling sensation, twitching eyelids or mouth
Sensitivity to cold
Constipation
Elevated blood pressure
Frequent urination
Dryness of skin
Recurring chills
Dizziness
Fainting
Numbness, tingling or a burning sensation especially in the hands and feet
Rhabdomyolysis (severe deficiency)
Flaccid paralysis (severe deficiency)
Lupus anticoagulant is a specific immunoglobulin that prolongs the time it takes blood to clot but does not produce a bleeding disorder. Lupus anticoagulant occurs in approximately 25% with lupus erythematosus, seen in people who take phenothiazine medication, autoimmune diseases, but also can be seen with no other conditions or diseases.
Symptoms of lupus anticoagulant include:
May have no symptoms
Nose bleeds
Bleeding gums
Bruising
Skin rash
Vaginal bleeding between periods
Bloody urine
Skin redness or inflammation
Possible complications of lupus anticoagulants include blood clot in lungs (pulmonary embolism), heart attack, stroke.
Have you been tested for the specific RF? All of my tests were boarderline or neg until I found a Rheumy that did the specific tests. Now with treatment I am doing well.
Just a thought.
T
i guess no one ;(
thanks anyway
i almost forgot ... this is concerning .... my joints esp hips pop everytime i stand up