Stuck in disease limbo-Really need help or advice!

[DiseaseLimbo]

Hi everyone! My name is Alison. I'm 27 years old. I've had Crohn's disease for 20 years now. I also had the pleasure of having Endometriosis in my bladder and outside my uterus on my intestines, etc. I had a total hysterectomy when I was 22 due to this. I've had 6 inches of my intestine removed when I was 12 due to the Crohn's, many kidney stone removals, gallbladder removed, and many exploratory laps. I've been on two TNF drugs: Remicade and Cimzia. When I was 22, I also had pseudomonis pretty bad where I went septic after having a kidney stone removed. I had shingles two years ago as well and have been diagnosed with PHN because of it. Lupus and Scleroderma run in my family. Alright now onto the question...for years on and off I would get hit with major fatigue, nausea, dizziness, and low grade fevers. I've had mouth and nose ulcers as well. Every time we would just assume it was the Crohn's disease until my Crohn's went into remission 4 years ago. Now whenever this happens they scope me from top to bottom and nothing ever shows up. I've been tested for MS because I was having memory issues, and I couldn't think of words and form sentences. I was having difficulty with numbness and tingling in my fingers. I got a MRI and that was negative. I was told it was all in my head and to "stop thinking about my body so much". I am originally from Florida and last year I moved to Canada with hope of not having to pay another $14,000 medical bill (after insurance). Now I'm experience more symptoms with still no diagnosis. I was diagnosed with Raynaud's Phenomenon in November of last year and was sent to a Rheumatologist. He said it was probably drug induced Lupus even though I wasn't on any medication and he couldn't tell me what "drug" would be causing this. He sent me for blood work because I also have had "sun rashes" that were unexplained by dermatologists for two years, dry eyes, joint pain, etc. Blood work came back negative and he told me he would see me in 4 months offering me no help from the fatigue, nausea ( I could not get out of my bed or sit up without feeling like I was going to faint or vomit) and also the Raynaud's. That ended up passing after 3 weeks of not being able to function and having no help. The Raynaud's continued. I got more mouth ulcers on my tongue and lip and again scoped for my Crohn's and found that it was not active. Flash forward to last week...Last week I started having a pain on my inner arm in the space between my elbow and wrist. It felt like my skin had been rubbed against repeatedly and was just really irritated or tender (like when you have the flu). I went to the doctor and he said to look out for the shingles rash again and put me on Celebrex. The Celebrex worked for a couple of days and then it got worse. Much much worse. My joints were feeling like they had Charlie Horses inside the bones. My left ankle, knee, hip, and wrist were really cramping. He told me to stop the Celebrex. The pain subsided a little but my arm pain was back. Wednesday I was in the sun all day and then Thursday all hell broke loose. My arm started to REALLY hurt. I couldn't touch my skin, move my fingers, or even hold my phone in that hand. I also had what looked like a vein webbing on my arm. I went to the hospital and she said it was "too complex" for her to diagnose. I saw my doctor the next day and he ran blood work and that came back negative again. Now he's sending me to a sports medicine doctor but I feel like I'm about to spiral off course and that I won't find my diagnosis there either. I'm not sure what I should do and any advice would be greatly appreciated!