dizziness, nausea, fatigue, light sensitivity, headache, cold hands/feet, joint/muscle aches, weakness, What is it?

[trixi138]

I am a 26 y-o- Female. For the past 3 months now I have been having strange symptoms like nausea, dizziness (extreme at times), headache behind the eye and sensitivity to light, joint/muscle aches and stiffness mostly in hands and feet but occassionally like a full body flu-type attack, weakness in wrists, cold feet and hands that feel like they are plunged in ice water whenever I take a hot bath/shower, constant feeling of cold so that I just can't get warm, occasional hot flashes and chills, exhaustion and sleepiness all day but hard to stay asleep, and memory problems/disorientation like a brain "fog", flashes and shadows out of the corner of my eyes, and some other symptoms not listed. I have a history of Graves Disease diagnosed at 12 years old and treated for several years with PTU. I had a relapse at the age of 18 and had radioactive ablation of the thyroid done. I have recently seen a rhuematologist due to a slightly elevated RH factor (14) and he drew more labs to detect Lupus and other autoimmune connective tissue disorders, all of which came out negative or normal including the CCP test for rheumatoid arthritis. Though my TSH levels have been hard to keep stable (recently miscarried at 8 weeks with a TSH of 40), this last test was normal (Currently taking thyroxin 100 mcgs and Cytomel 10 mcgs) including antibody and FT4 and FT3 levels. Blood count and lIver tests were also normal. Xrays of hands and chest were normal. Opthamologist visit reported normal eyes except for slight dryness. Other than these, I have a history of repeated low vit D levels, atypical PCOS as determined by cystic ovaries on ultrasound and borderline insulin resistence, but no androgenic factors. I go to neurology in a month's time and also back to rheumatology. I know there are autoimmune disorders of the nervous system that can cause some of these symptoms, but I have not noticed numbness or nerve-like pains or extreme muscle weakness that seem to be found in most of them. I know it is possible that I have the early stages of rhuematoid arthritis as I do have a family history of it, but some of these symptoms don't seem to fit. Any ideas about what could be going on with me and further testing I need to pursue? Thank you.

[kroth226]

Hi I'm a healthy 25yr old female needing advice! Over a month now I've been to 3 doctors one urgent care visit and the other day an ER visit.....symptoms have been nausea non stop wanting to eat but when I eat I wanna get sick headaches very dizzy shaky night sweats no energy short of breath pain in my left abdominal pain numbing feeling in my legs and finger chest pains...now at first I had pluerisy treated doctors said a cyst on my ovary now there saying kidney or GI problem my blood was good except my WBC I have leukopenia since 12 yrs ago and they were at a 3.2 and my vitamin D was very low also...they've tested for mono thyroid diabetes...I can't go on with this anymore it's taking away me away from my business my marriage and my daughter I don't wanna get out of bed and my doctors are just brushing me off with a crap load of meds and nothing is helping so please anyone with thoughts

[xp_alidoshious]

I'm a 30 year old female. 8 months ago i was diagnosed with Graves disease. I had a severely difficult time with this as i was allergic to the PTU and Methimazole and also had all of the symptoms. Sweating, heart palps, arrythmia, muscle weakness, exhaustion, anxiety and more!!!  Finally had RAI and started on synthroid after going all the way Hypo and having delayed speech, no energy, aphyasia, brain fog, digestion problems, BP issues and MORE! I'm finally regulated on synthroid 3.69 and now I am having an problems AGAIN. It started with dizziness, pain in eyes, difficulty with vision then it escalated to light sensitivity, nausea, problems with colors, photophobia, brain fog, indigestion, pressure in the head, headaches, problems sleeping. through all of this i have only felt well for 2 days and this was before i was bumped all the way up to 3.69. even typing this is taxing as i have difficulty looking at t.v. focusing on pc screens and cell phone screens. I am not abot to drive because of my problems with lights during the day and headlights at night. PLLLEEEAAAASSEEE HELP ME! It's affecting my life and i can't get out and about, my dr thinks i'm nuts. I've been tested for every disease under the sun. I'm waiting for my eye exam and to see a nuerologist. Dr says it could be migranes but if it is how am i supposed to function like this? HEEEEELLLLLLLPPPPPP!

[xp_alidoshious]

I'm a 30 year old female. 8 months ago i was diagnosed with Graves disease. I had a severely difficult time with this as i was allergic to the PTU and Methimazole and also had all of the symptoms. Sweating, heart palps, arrythmia, muscle weakness, exhaustion, anxiety and more!!!  Finally had RAI and started on synthroid after going all the way Hypo and having delayed speech, no energy, aphyasia, brain fog, digestion problems, BP issues and MORE! I'm finally regulated on synthroid 3.69 and now I am having an problems AGAIN. It started with dizziness, pain in eyes, difficulty with vision then it escalated to light sensitivity, nausea, problems with colors, photophobia, brain fog, indigestion, pressure in the head, headaches, problems sleeping. through all of this i have only felt well for 2 days and this was before i was bumped all the way up to 3.69. even typing this is taxing as i have difficulty looking at t.v. focusing on pc screens and cell phone screens. I am not abot to drive because of my problems with lights during the day and headlights at night. PLLLEEEAAAASSEEE HELP ME! It's affecting my life and i can't get out and about, my dr thinks i'm nuts. I've been tested for every disease under the sun. I'm waiting for my eye exam and to see a nuerologist. Dr says it could be migranes but if it is how am i supposed to function like this? HEEEEELLLLLLLPPPPPP!

[searchingwholeness]

I am a 49 yr old women with a  diagnosis(DX )of Fibromyalgia(FMS) for 13 yrs...actually had it much longer but had t0o change docs to get the "it's all in your head"  dx changed to the correct dx. First I have to say BE YOUR OWN ADVOCATE. As a nurse (disabled now) I have watched patient after patient be brushed off as being hypochondrical or paranoid only to go on and come up with a dx the doc later conformed. HOWEVER I warn you to be careful as there are many theries,potential cures and dx out there that ARE MISLEADING AND FALSE...BUT listen to your body and journal your symptoms (sx). Ok so I too share so many or most of the sx mentioned on this forum and am headed to the doc for more answers. You see once you get a CFS or FMS dx etc. they sometimes brush aside additional sx as part of your anitial dx and serious secondary diseases aren't diagnosed for months,years etc. and treated(tx) until irriversible damage has been done.  Common FMS prognosis is deal with it it won't 'get worse' you just have to manage the sx. I can tell you that is false. Let me interject that a gluten free,sugar (both regular & artificial) diet  night shade free, dairy free diet has been hugely instrumential in managing my pain. Stretching, excersise and relaxation are key.(I remember reading this and wanting to wring a neck) as if I could exercise or relax. It is a gradual process and we chronically ill people (with good reason) are impatient. Few understand us...docs, family, loved ones as you truely can't unless you can relate. Anyway i go to the doc tomorrow to be my advocate! I will be back with my additional info. as I home I can help someone any bit of help my story can give...God bless!

[mjnolt]

please request blood test for celiac disease.  I had almost ALL of the same exact symptoms...consistent with atypical celiac disase...thought i had early lupus RA all tests negative/neg hand mri/xray. No doc suggested this test I reqeusted it and diagnosed myself! also celiac is common in people with autoimmune thyroid. feet/hand symptoms could be neuropahty part of they atypical celiac presentation.   tried all the poisonous meds that didn't help....here turns out i need to avoid gluten.  good luck!

[Raymond4674]

Hi my name is Raymond about 5 months ago I was in the gym and all of a sudden I got sharp pains in my eye then got real dizzy I went to the ER they didn't help at all.Since then been going to doctors took MRI of the Brain Mra or Brain Veins tons of blood test all normal.oh and cervical spine MRI some bulge disc but doctor said not the problem.i have headache every day for the 5 months neck pain eyes hurt and I here this weird like creek like a ratchet sound in my neck.i also have some hearing loss and tinnitus the net says I have otosclerosis and that's the problem but the ear surgeon says it won't cause these problems the and feel full every now and then and I keep getting bad pressure in my forehead and now the runs.Its really destroying me every day I am slowly loosing myself I don't do anything anymore I never feel good I still work but even slowing down on the I am really scared I don't know what to do.Any thoughts would really help thanks..