looking for information please.

[jeanie_24]

Hi I was looking for information on anticardioplin antibodies and I.T.P.
I was diagnosed with chronic I.T.P when i was 8, i now 31. I am 16 weeks pregnant and have stable platelet count of 50. I was told at hosp visit yesterday that i tested positive for anticardioplin anitbodies, but was not started on any treatment. Does anyone have any information on this please, rather anxious.

[jeanie_24]

Hi Nicola,  I do not know my test results, they never told me, i have left message this morning for my consultant obs to call me back, but as of yet no call.  I have had no known issues of clots in past, more the opposite with my I.T.P.  I  just very concerned that i should maybe on some sort of treatment.

Thanks again for you help.
Jennifer.

[thyroidian]

Hi Jennifer.

There is a fantastic website at www.hughes syndrome foundation.org
The website is very informative, and the specialists are the best in the world for this illness.

I cant answer your question, because i dont know your blood results, but if you are not happy, then i would seek a good second opinion.

Do you have any other symptoms, alongside the ITP?
What clotting issues have you had previously?

I am sure if you send an e-mail to the Hughes Syndrome Foundation, with your query, and test results, they maybe able to advice on your next steps.


Good Luck
Nicola.
P.S. I have never had platelet problems with my Hughes Syndrome, I have clotting Issues, but I do know people with Hughes Syndrome with Platelet Issues.
So I dont know much about the treatment for Platelet conditions, only that they usually use Steroids somewhere along the line. But with the clotting Issues, they usually use warfarin, aspirin, or heparin.
Keep me posted please.

[jeanie_24]

Hi Nicola, thanks for your reply, i already have 1 daughter at 13 years old, and never knew anything about it until Fri of last wk, i am going to contact my hosp this morning and see what info they can give me, but to be honest i am struggling with it all, very anxious at the moment. They did re - test on Fri and never really gave me anymore info on the antiboby, so all i can think is that my low platelets are balancing it up?? do u think that this is possible?? i would really appreciate the info on some websites. I have had know clotting issues etc that i can think of, it been more my I.T.P that has been concren but platelet count has stabled out at 50. Do u think i should be on any of the treatments u mentioned??  thanks again for your reply.
Jennifer

[thyroidian]

Hi.
I have Anticardiolipin Antibodies. as i have the Antiphospolipid Syndrome/Hughes Syndrome.

I do know that ITP can be a complication of this syndrome, and many people are told they have ITP, which they have but is caused by the Antiphospolipid Syndrome.

I also know that with this syndrome, some ladies need help with anticoagulation,throughout pregnancy. Which is usually heparin and aspirin.
But you need to mention this to the haemotologist, or consultant who is looking after you.

Have you ever had any complications regarding pregnancy? ie miscarriages, pre-eclampsia, or premature births?

Have you ever had any clotting issues, ie like bloodclots? headaches? etc...

If i was in your shoes, i would try to get as much info on this as possible.
Then take it to the consultant who is looking after you.
I do know they have some very good specialist in London, who treat the Antiphospolipid Syndrome, and Pregnant ladies.

I hope this has helped you, and if you need anymore info , just give me a message, and i can point you to some very good ebsites, and doctors, who specialise in this condition.
Goodluck with your pregnancy.
Nicola