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Heat intolerance, fatique, no energy
Hello, I had not been diagnosed yet. I saw some doctors but they don't know why I have those symptoms. Basic blood work came back negative. I have a huge heat intolerance, with temp over 71 F, can not take warm bath, can not eat anything warm,I have hard time to concentrate and communicate, abdominal pain, pain in left leg and hip. Soon as the heat will hit me my face and fingers will be like on fire. I am having the same symptoms with emotional stress. When i have stressful situation immediately my face is like on fire, I am having very dry heat in my face(it is coming from inside me, my breath is hot) and color of my face is deadly white. I think that something is happening with blood float at that moment, almost like blood is not coming to my face. The same time my fingers will get very swollen, fluffy, red and hot (I think the blood from face goes to fingers). When this happen - immediately I have pressure in my head (feel like something cracked in head), I get very fatigue and tired, have no energy. I have to lay down. I can not eat or drink anything warm, If I have only one sip of anything warm I get big sharp pain in my stomach/esophagus all my body will shake, huge heat in face and fingers, extremely fatigue, totally drained, sick, I have to lay down. I am not eating warm food for 8 years, I can not be outside in summer time, I can not cook (heat from stove makes me sick, even steam from warm plate would make me sick). Can anybody help me, please?
Thank you for supporting me Heiferly.
Are you asking me to edit this to somewhere else? Do I understand this right?
Are you asking me to edit this to somewhere else? Do I understand this right?
Thank you so much for you advice. I think I need to go there. I will start working on it. You gave me a new hope. I can not get any answers from my doctors. They don't believe that I can get any of those symptoms from herpes. They don't believe that I am so sick. They think it is all in my head or it is anxiety. I do have question regarding the appointment. I am littlebit confused about that part when you specified to make app with internist gynocologiest? Can you explain me this again? Sorry.......
You don't know how much I apruciate your advice. Thank you and have a good evening.
Js.
You don't know how much I apruciate your advice. Thank you and have a good evening.
Js.
This is really excellent advice about getting a comprehensive multi-specialty diagnostic workup at one of "the biggie" hospitals!!! I'm thinking we could really use something quite similar to this description (sans the case-specific parts for js59) in our health pages. Would you be interested in editing this into such a description, or allowing one of us co-CLs to edit it for you (we'd give you a chance to OK it after we edit before we put up the health page, and you'd get credit since you wrote it)? I think it would be a great resource for many MedHelp members here on our dysauto forum! Think it over and let me know what you think.
Many health issues are hard to talk about but we have to keep talking or get sicker. I had a neurologist say I was faking things and was in and out of my room in the hospital in less then five minutes. He of course did not say this TO ME but when I got my files to take to the Mayo Clinic there it was. I have yet to get his bill but if so I am sending him a note back about this and it won't be nice.
There are several places in the US that you can go to when no one else knows what the heck is going on. The main two are the Mayo Clinic in Minnesota and The Cleveland Clinic in Ohio, both of these places have branches but the branches are NOT like the main place.
You go to there and have one main doctor and then they send you to see other doctors and have every test needed done and they all communicate and have access to look at everything and as a team come up with an answer.
I asked someone who has been in the medical field for over 30 years which of the two I should go to and he said first Mayo then Cleveland.
There is a branch here of the Mayo Clinic in FL that refused to see me as a diagnostic patient because I had too many issues, the Main did not BUT I only gave them the three issues that really made my life unlivable and kept my words short.
Example if I were you and I was going to go to the Mayo clinic in Minnesota
I would call the gynecology department and ask if they have internists who work in the department (this is a trick I learned if you call and try to start with an internist in the department that handles internists its many many many months) I would ask to set up an appoitment with the internist in the gynecology and I would set up a appointment with a gynecologist. I would make an appointment in gastroenterology, sleep. etc.
I would make as many appointments as possible ahead of time and plan on being there a week or two, once you are there they will work their hardest to get you in to see everyone you need to see and every test you need done but you have to get in and the more appointments you have set up ahead of time the better of a chance of getting everything done.
I would tell them
1. I have had herpes for 12 years and list 3 serious symptoms that go with it
2. I can not eat heated food or drink and then list 3 serious symptoms
3. I would tell them I have had constant fatigue and list three symptoms
I would also ask about getting an interpreter, they have them for patients and why add to the stress OR maybe there is a word in your native language that we do not have in English that best fits a symptom, their job is to get that word in English to the doctor.
Once you get there with your files you can get more in depth with everything but you want to be brief to get in.
I looked at my list of symptoms and said ok which ones make me not be able to live alone and take care of my daughter and started there. Once I got there they got the whole list and all tests and I had all my medical files but they did not really need them.
Because your symptoms are not only in one area I would plan to be there two weeks. I started at a week but so much was added and some of the tests and doctors are harder to see.
There are several places in the US that you can go to when no one else knows what the heck is going on. The main two are the Mayo Clinic in Minnesota and The Cleveland Clinic in Ohio, both of these places have branches but the branches are NOT like the main place.
You go to there and have one main doctor and then they send you to see other doctors and have every test needed done and they all communicate and have access to look at everything and as a team come up with an answer.
I asked someone who has been in the medical field for over 30 years which of the two I should go to and he said first Mayo then Cleveland.
There is a branch here of the Mayo Clinic in FL that refused to see me as a diagnostic patient because I had too many issues, the Main did not BUT I only gave them the three issues that really made my life unlivable and kept my words short.
Example if I were you and I was going to go to the Mayo clinic in Minnesota
I would call the gynecology department and ask if they have internists who work in the department (this is a trick I learned if you call and try to start with an internist in the department that handles internists its many many many months) I would ask to set up an appoitment with the internist in the gynecology and I would set up a appointment with a gynecologist. I would make an appointment in gastroenterology, sleep. etc.
I would make as many appointments as possible ahead of time and plan on being there a week or two, once you are there they will work their hardest to get you in to see everyone you need to see and every test you need done but you have to get in and the more appointments you have set up ahead of time the better of a chance of getting everything done.
I would tell them
1. I have had herpes for 12 years and list 3 serious symptoms that go with it
2. I can not eat heated food or drink and then list 3 serious symptoms
3. I would tell them I have had constant fatigue and list three symptoms
I would also ask about getting an interpreter, they have them for patients and why add to the stress OR maybe there is a word in your native language that we do not have in English that best fits a symptom, their job is to get that word in English to the doctor.
Once you get there with your files you can get more in depth with everything but you want to be brief to get in.
I looked at my list of symptoms and said ok which ones make me not be able to live alone and take care of my daughter and started there. Once I got there they got the whole list and all tests and I had all my medical files but they did not really need them.
Because your symptoms are not only in one area I would plan to be there two weeks. I started at a week but so much was added and some of the tests and doctors are harder to see.
Hello and thank you for your response. You know, it is very embarrassing for me talk about my STD but I do have to .... I live in NH, I had HIV and syphilis test done 12 years ago, I had MRI of spine cord and brain, EEG, ENG, tilt table (last year), basic blood work &for lupus,sugar level, some thyroid tests ( all this year), colonoscopy, endoscopy (two weeks ago). I have to say that over the time I feel better somehow but I feel worse somehow too. Let me explain this to you: 12 years ago up till 5 years ago I had a huge pain in vulva(one open cut where I had the lesion), huge heat and pain in pelvic floor,hip, thigh shooting to my leg(all left side of my body), low back pain, spine cord pain like something was pressuring, abdominal pain- at that time I could not eat anything but salads, every time I ate I got full very quickly, got big pain in stomach, pressure in my cord, pressure in my forehead &nose, heat in my face, my body was shaking like I was having a fever. At work I did have to lay down on the floor for about 45 minutes to get my energy back. I also was having presuring pain on back of my head/end of spine cord. And I forgot I have very broken tongue-open cuts looks like(it is painful).All those symptoms I can say I do not have any more except: open cuts in vulva multiplied, tongue is the same,pain in pelvic and hip is the same, much less abdominal pain, huge heat in my face constantly, untolerated when I have emotional stress. At that moment my face is like on fire, crack like in my head and after that I am totally sick, can not function at all, shaking like I am having fever. Oh and i forgot, I have the same symptoms when I drink or eat anything warm. And I have heat in my fingers.
Integrated manual physical therapy is the only treatment what is helping me for last 6 years. Thanks to them I can eat better and I can live better.
I never heard about head to toe look and I have no idea where they do tests like this?
Thank you for all your help, take care of your self and have a good Friday!
Js :)
Integrated manual physical therapy is the only treatment what is helping me for last 6 years. Thanks to them I can eat better and I can live better.
I never heard about head to toe look and I have no idea where they do tests like this?
Thank you for all your help, take care of your self and have a good Friday!
Js :)
I read what you have written and think you need a head to toe look. What area do you live in?
I am also confused about when you have had tests run....I see there have been some ran but it looks like they were spread over years, lots of years. What have you had done recently and are things getting worse over time?
Did you have other STD tests run? (I am not sure why this is important but when I was at the Mayo Clinic I was asked and tested for them)
Do you take medications for herpes?
I got sick last September and was seeing seven doctors who kept pointing fingers at the other or shrugging, after dealing with this and getting no where but worse I had no option but to go somewhere where I could be looked at from head to toe and psychologically. I did not know how I would get there and did not have the money to fly from Florida to Minnesota, stay in a hotel, oh and after a hospitalization I had to take a second person because my memory became so bad they called my family and said it was unsafe for me to travel alone but I started praying and it happened.
My life was saved by having this diagnostic head to toe look. There are few places that do this but they do exist.
I am also confused about when you have had tests run....I see there have been some ran but it looks like they were spread over years, lots of years. What have you had done recently and are things getting worse over time?
Did you have other STD tests run? (I am not sure why this is important but when I was at the Mayo Clinic I was asked and tested for them)
Do you take medications for herpes?
I got sick last September and was seeing seven doctors who kept pointing fingers at the other or shrugging, after dealing with this and getting no where but worse I had no option but to go somewhere where I could be looked at from head to toe and psychologically. I did not know how I would get there and did not have the money to fly from Florida to Minnesota, stay in a hotel, oh and after a hospitalization I had to take a second person because my memory became so bad they called my family and said it was unsafe for me to travel alone but I started praying and it happened.
My life was saved by having this diagnostic head to toe look. There are few places that do this but they do exist.
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