YEP! Chugga, chugga, anop?ther week here. So whats u

[tonyad]

  Hi Friends,

   Can not believe that we are already heading into Tuesday!  Time is zipping by me so fast. Can anyone else relate?? Here is my Agenda.....

Tuesday: NeuroPsyc (sp) testing for my MS.  Neuro checking to see how much of my cognition is affected by my MS....I am scared to find out.....Lol

wednesday:  Rest, Rest, Rest  :)

Thursday and Friday I have something but can not remember and do not have my Planner in front of me..Lol

   I hope that everyone has a "Smooth" week and that no unexpected "yuckies" come up!

Hugs to you all  ;)
Tonya

[tonyad]

  
   Good luck w/ your Appeal :0   Try and not let it stress you out to much!

Hi Beema :)

~T

[beema36]

Globalhiking-thanks my pets r like family to me. Will miss her..:(

Fighting the system is the pits! And especially when ur having health issues. My heart goes out to u. We r experiencing this with my son who has diabetes and serious health issues so do understand. I wish u luck.

[globalhiking]

So far this week has been dedicated to trying to complete my dossier in support of my appeal against the Employment and Support Allowance (ESA - I think the equivalent in the USA is SSI).
This is such a soul shrivelling exercise - I really would like to work (any work!) but with HRs often above 110 while seated, 110 to 160 while standing and 120 to 160 while walking real slooow, it is impossible to get to work or do the work.
And this does not include all the other dysautonomia symptoms.
I have written about 15 pages of rebutal! and re-reading them make me depressed :-(
Fighting the system is no easy task even at the best of time!
Anyway such is life ....

To Tonya - You are right, time is just flying by. A friend of mine living in Arizona told me that a neighbour has already put his Christmas lights up!!!
- If anything else your spelling is highly entertaining :-)

To beema - I'm so sorry to hear about your cat passing away. Pets have a way to wiggle their ways into our hearts, and are dearly missed when they leave us :-(

[beema36]

I haven't yet but am asking my ep.when I.see him and my neuro when he gets over being mad.because I choose nut to.do.tysabri at this time. My primary care Dr is looking into it.

My daughters biggest fear is.the skin reaction with lamictal and how.it would affect her as she has to drive kids to school etc and I am not much help at this.point in the driving dept.

Let me know what your Drs say and I will do.the same regarding lamictal.:)

[beema36]

I haven't yet but am asking my ep.when I.see him and my neuro when he gets over being mad.because I choose nut to.do.tysabri at this time. My primary care Dr is looking into it.

My daughters biggest fear is.the skin reaction with lamictal and how.it would affect her as she has to drive kids to school etc and I am not much help at this.point in the driving dept.

Let me know what your Drs say and I will do.the same regarding lamictal.:)

[tonyad]

   Hey you :)

   No, I have not been to my appointment as of yet to talk to her about the Lamictal. However, I am wondering if I should check w/ her (My cardio), w/ My EP doc, my GP, or my Neuro...?

    Just another thing that nakes my mind go Hmmmmm!  ANd...use energy thinking that I do not have to give..lol  I guess I am going to be touching base w/ eaqch of them as each appt comes up in the next several weeks.

   I can understand your daughters feelings. Taking meds is scary to me!  I can say that My daughter takes it 300mg (2) times daily.  She has been on it for at least a good year and so far.....No Ill effects..Thank God.


Let me know what she decides to do. Have you spoke w/ any docs about Lamictal?
take Care,
~Tonya

[beema36]

Tonya- thanks my pets are family so really breaks my heart. She had a void long life though.

I didn't even notice errors in title.lol Others probably won't either.

I use dayplanner and my smartphone as reminders. I figure with both of.them reminding me I.may.remember something at least.:)

Did.u.ever.talk to.Dr regarding using lamictal? My daughter today was told she.has seizure disorder and.they want her to take lamictal. She says it sounds dangerous and she's afraid.to.take it. I actually think.she has POTs but so far nobody listens to me.:)

[tonyad]

   Awww, I am so sorry to hear about your kitty cat  :(  We get so attached to our animals just as they were people.

    Yes, Planners are great..If you can keep up w/ it AND write the right things on the right date...Lol  That's my problem..lol

     Thanks for the nice thoughts on my cognition :)  But gosh! when I look back at my post title....What the heck????  Can you say Spelling and finger typing errors at it's finest (sp)!

    I wish I could go back and correct that.  New comers will jump on here and think I am a Goof Ball.....

Enjoy your Friday w/ your Grandkids.  I so LOVE being w/ mine also.

Take Care,
~Tonya

[beema36]

Love those planners. Don't know what I.would do.without one.
Tues.-say goodbye to my precious 17 yr old kitty who passed away over weekend.:) Will miss her.
Wed.- therapy appt
Thurs.-rest I hope
Fri.-take grandson to.Chuck E Cheese. Keeping fingers crossed that body will cooperate. Love my time with grandkids. They are my joy.:)

Tonya-hope testing goes well. Am sure it will. Your cognition seems pretty good.to me.

Hope everybody has a wonderful week.

Beema