Has anyone been treated at Vanderbilt for POTS?

[rhondalynn]

Has anyone been treated for their post-viral dysautonomia at the Vanderbilt Medical?
I have been waiting for an appointment for months, but am having second thoughts.
Was instructed to stop all meds 24 hours prior to appointment.  Concerned about getting really sick again.
I most travel 6 time zones and fly, which is so terribly uncomfortable.
Has anyone suggestions?  Thank you.

[rhondalynn]

Thank you so much for your post.  Yes, I believe Vanderbilt is a leader also.
Just not sure if I can fly for 8 hours and stop meds for 24 hours before appointment without a significant relapse.  And then too, am concerned that resuming current
medication regime might not be effective.
ALOHA,
Rhondalynn

[Heiferly]

If you look at where research and publications are coming from, the best choices for cutting edge medicine in the field of dysautonomia seem to be Vanderbilt, Mayo (Rochester), Johns Hopkins, and Dr. Grubb's clinic in Ohio.  I would say if you are still having significant impairment to your life despite the treatment you are currently getting, it is probably worth it.  I think Vanderbilt is currently hosting a number of clinical trials on dysautonomia at the moment; you can browse them on the NIH website I believe.