I have managed POTS for 3 years, this last week have had the flare from hell and it won't quit. When things are bad my hr tends to go low and I get symptomatic below about 71. It's been as low as 55 and at night has been swinging in rushes between 55-110 (very low for me, 120- 150 would be more normal!) and lots of severe nausea, blurry vision, headache, dizziness. I can see all this swinging around at night (and bp actually for me pretty high while it's happening) but when I got to hospital this afternoon my heart rate was 78-85 and bp was 120/80- 150/100
They said I was fine. Put an IV since I asked and it helped so much on Monday when I went in feeling terrible, shot anti nausea meds through it, I fainted on the table right in front of them about 10 seconds later and couldn't talk for a few minutes. The IV started to take effect, an hour later I could see straight and walk out under my own steam. However as far as the hospital are concerned, my bp/hr were the same before they started as when they finished, I was stable all the time, my cardio was there and did a quick exam, EVERYONE said you're fine. Nothing wrong. You don't need fluids. My mother was told if I faint at home and I'm unconscious to put me in the recovery position but not bring me back in, I don't need help and there's nothing they can do.
The fluids HELP so much, I felt so ill that I sought emergency care twice this week for the first time in 3 years since diagnosis. But it isn't showing on the monitors! No one is EVER there with a screen on when my hr is going insane. Is there any reason it isn't showing? Is there anything I can do? I can't handle this alone any more.