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Valsalva headaches and POTS
Does anyone know anything about valsalva headaches and POTS? Can POTS cause headaches associated with straining, coughing, head movement etc.
I have googled a lot but I don't seem to find anything.
I have googled a lot but I don't seem to find anything.
Sorry, I don't understand, did you have a CSF leak too?
For me it is like this; I have these strange chiari-like symptoms but no chiari found on MRI. I have POTS but it is unclear if these symptoms are caused by POTS or not. Not many people with POTS seem to have them.
I have no idea what it is and if I will ever get well again. I hope for the best though. But the situation is clearly very complicated.
I think a chiari specialized NS is a very good idea.
But still, it is not 100% that it is chiari, keep that in mind.
For me it is like this; I have these strange chiari-like symptoms but no chiari found on MRI. I have POTS but it is unclear if these symptoms are caused by POTS or not. Not many people with POTS seem to have them.
I have no idea what it is and if I will ever get well again. I hope for the best though. But the situation is clearly very complicated.
I think a chiari specialized NS is a very good idea.
But still, it is not 100% that it is chiari, keep that in mind.
Took Florinef and received worsening migraines. Getting ready to switch to Salt Tablets....should be interesting.
I truly believe all my problems are related to the low lying cerebellar tonsils. Been through 2 NS and currently waiting for my appts. with a Chiari Specialists NS. They have me seeing the geneticist as well to rule in/out connective tissue/hypermobility....I am assuming EDS.
I have acquired so many conditions since the neck trauma. Thyroid, POTS, migraines, acid reflux, upper airway obstruction. So I agree with you....just need to get the drs. in order. My PCP also thinks all these problems are Chiari related.
Leaning towards "acquired" from spontaneous CSF leak.
Will see what they say in June.
I truly believe all my problems are related to the low lying cerebellar tonsils. Been through 2 NS and currently waiting for my appts. with a Chiari Specialists NS. They have me seeing the geneticist as well to rule in/out connective tissue/hypermobility....I am assuming EDS.
I have acquired so many conditions since the neck trauma. Thyroid, POTS, migraines, acid reflux, upper airway obstruction. So I agree with you....just need to get the drs. in order. My PCP also thinks all these problems are Chiari related.
Leaning towards "acquired" from spontaneous CSF leak.
Will see what they say in June.
It sounds more like symptoms of chiari than POTS.
Did it resolve with POTS specific treatment?
Did it resolve with POTS specific treatment?
I was recently DX with POTS and told that headaches are definitely a contributing factor with POTS especially with straining, head movement, bending over, etc.
The way the EP (electrophysiologist) explained it was that the blood pressure drops with pressure and movement so with the drop it is not circulating up to the head as it normally would.
Although, I also have herniated cerebellar tonsils/probably Chiari Malformation. I never had any POTS type symptoms until a trauma
occured to my neck.
Try looking under Vanderbilt Dysautonomia.
The way the EP (electrophysiologist) explained it was that the blood pressure drops with pressure and movement so with the drop it is not circulating up to the head as it normally would.
Although, I also have herniated cerebellar tonsils/probably Chiari Malformation. I never had any POTS type symptoms until a trauma
occured to my neck.
Try looking under Vanderbilt Dysautonomia.
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