are these some of symptoms of autonomic instability?

[skypeople]

I have been suffering from some sort of slowly progressing neurpathy with no follow up with
VA for some time.  One symptom I have had for several years now is that I no longer sweat anywhere on my body even when hot.  When I get hot my face, hands and feet get brick red and have to cool down.  It also seems like I cannot control my body temperature very well and have periods of time where I get so cold (even  during summer) where I get chills, and feeling so bad that i have to lay down and go to sleep; it feels like I am drugged at the time.  I also have problems with blood pressure jumping all around from normal to very high and same with heart rate.  I am sure I am not remembering everything as memory has gone down hill for some time.  But guess I want to know if this sounds like begining or starting of auctonomic instability

[siembe]

Well i suffer autonomic instability, i'm 14 and it has almost ruined my sporting ability. I can barely walk up stairs or laugh hard. The two main symptoms is struggle to cope with are the constant fatigue and the exercise intolerence. I used to play representative basketball and now struggle with one game per week. I live in the tropics and my blood pressure and heart rate are constantly unstable. I also seem to have some problem with my memory which has come on with the illness. I suggest checking all possible causes as autonomic instability or dystautonomia has little treatment options. I was seen in a childrens hospital where stress, cardiological problems and genetic abnormalities were ruled out. I did however have an "innocent" heart murmur. I suggest being checked out by a connective tissue specialist or geneticist as one of the contributing factors to my autonomic instability is "benine hypermobility syndrome". I hope this can help because I understand the frustration of an undiagnosed problem.

[sue3708]

I've now had 1 normal tilt and one abnormal (although I didn't faint)......The neurologist has suggested POTS.  Still don't feel good but have a possible explanation.  Very tired, woozy, feel disconected to my body.

Good luck

[Heiferly]

Sorry to hear about all your symptoms, but it definitely sounds like it could be some form of dysautonomia.  Many doctors are unaware of the different forms of dysautonomia, and getting testing and a diagnosis if you do have it can be rather difficult.  The first test to ask for is a tilt table test, but do realize that these aren't 100% reliable--you may be having a "good day" the day of the test and not respond as you would another day, or the doctor might follow a different protocol than a different doctor with different results (various medications and angles and timings can be used).  Perhaps just as valuable is getting a blood pressure cuff with heart rate for use at home.  Take your BP/HR regularly both when you are and aren't having symptoms (and indicate which is which), and in each of lying, sitting, and standing positions (mark which is which).  Providing your doctor with this data may help clear up anything that is ambiguous from a tilt table test.

Good luck and feel free to ask as many questions as you can think of!  Zebranet is definitely an excellent place for support; I recommend it as well.  (Be patient when you register for the forums, it can take a few days.)  The NDRF website has good information, as does dinet.org.  

[Lilmnstr]

Hey your symptoms do sound like dysautonomia , what form i dont know but I too am going through the mill as to find out what I have Ive been going to the mayo clinic and tomorrow is when they tell me what the hell I have. I took a paraneoplastic test that came back positive at a .07. They had to do a mri of my abdomen and pelvis (cause I had a ct of my chest already) to check for any masses or tumors, when that came back neg the test also said "consistent with autoimmune dysautonomia" so who knows but heres a great website if you have any questions they are the best the greatest and know all the ins and outs of this crazy disorder!    http://imazebra.net/
they helped me when i didnt know what was going on! Hope this helps and you get the answers your looking for, I know how frustrating this can be!

[skypeople]

I also suffer from bladder incotinence with sometimes not making it to bathroom in time (not stress related) or not being able to empty bladder without waiting for it to happen.  Plus I have severe constipation or diahrrea but very little in between.   Also have extreme fatigue and problems with muscle weakness; muscle jerking and restless leg syndrome.  Also have other type of headaches and suffer as many as twenty days a month...this is including migraines.  Like I said I have been diagnosed with Peripheral Neuropathy in 1999 which at that time, was suppose to be from B-12 but the neurpathy continues to progress and now hands and feet are numb, severe itching in same places, etc.  Extremely dry mouth, nose, and skin.