Aa
extreme bp change
As some.of u know I.have NCS and ms. I am on 4 bp Meds for bp which includes a betablocker for the tachycardia.
Last night I had weird experience. I actually had a good day. Was able to.do some.stuff around house that I haven't for a long time. My bp has been running in range of 106/60 most days as it was yesterday.astounded night b4 bed I was sitting relaxing and ears started ringing and felt full and I started ti shake. I took by it was 182/85 heartrate was 51 which isn't abnormal for me. Within an hr it went to 140/80. This a.m. its around 150/80 but I do run a little higher in a.m. I have had this happen a couple other times. Has anyone else had this experience?
Beema
Last night I had weird experience. I actually had a good day. Was able to.do some.stuff around house that I haven't for a long time. My bp has been running in range of 106/60 most days as it was yesterday.astounded night b4 bed I was sitting relaxing and ears started ringing and felt full and I started ti shake. I took by it was 182/85 heartrate was 51 which isn't abnormal for me. Within an hr it went to 140/80. This a.m. its around 150/80 but I do run a little higher in a.m. I have had this happen a couple other times. Has anyone else had this experience?
Beema
Enzymelover-thanks for.this information. It is bringing some thing to light for me.
My ep and pcp tell me my body gives large surges of.adrenaline which causes my anxiety and wired feeling a.good share of the time. In their opinion it is caused from AD. They seem to have no answer on how to handle it except to tell me.to.try to.relax. Easy for.them to say.lol
After reading your post I am more.convinced this hormone surge may be very connected to my bp spikes. I am told my anxiety is physically induced not mentally. If anyone else understands this better than me I would.appreciate.your input and how u have learned to handle the anxiety and wired feeling that comes with this surge.
Beema
My ep and pcp tell me my body gives large surges of.adrenaline which causes my anxiety and wired feeling a.good share of the time. In their opinion it is caused from AD. They seem to have no answer on how to handle it except to tell me.to.try to.relax. Easy for.them to say.lol
After reading your post I am more.convinced this hormone surge may be very connected to my bp spikes. I am told my anxiety is physically induced not mentally. If anyone else understands this better than me I would.appreciate.your input and how u have learned to handle the anxiety and wired feeling that comes with this surge.
Beema
I found and bought an old cardiovascular textbook several months ago. The baroreflex failure and compensation issues were described quite well here. They know it happens and they can test for it; now if only they could correct it when it goes haywire!
The whole idea of your body resetting itself to a new "set point" is new to me, and frankly, very disturbing. Most of this book goes beyond what I'm able to wrap my brain around, but it does appear that the loss of hormonal control is a significant part of almost all autonomic dysfunction.
Did you know: There are two hormones secreted by the heart - ANF (Atrio natriuretic factor) and ICA (Intrinsic Cardiac Adrenergic) that directly affect brain function. ANF affects regions of the brain that regulate emotions, learning and memory, and assists hormone balance. ICA regulates the release of dopamine and adrenalin.
When we are relaxed and peaceful, the heart exhibits a coherent heart rate pattern (seen on EKG) and sends a message to the brain to function in a parasympathetic state (relaxed, safe and secure). In this state, ANF and ICA assist optimal hormone function throughout the body.
But when we are highly stressed and fearful, the heart exhibits an incoherent heart rate variability pattern, and sends a message to the brain to function in a sympathetic state (fight or flight). A message from the heart causes the thalamus to shut down to any incoming sensory information not directly related to survival. In this state, cells in the brain die off, resulting in poor memory, fuzzy thinking and lack of interest, and ANF and ICA are inhibited, throwing off our hormonal balance and affecting our health.
So lets all keep our heart hormones happy. Laughter really is good medicine.
The whole idea of your body resetting itself to a new "set point" is new to me, and frankly, very disturbing. Most of this book goes beyond what I'm able to wrap my brain around, but it does appear that the loss of hormonal control is a significant part of almost all autonomic dysfunction.
Did you know: There are two hormones secreted by the heart - ANF (Atrio natriuretic factor) and ICA (Intrinsic Cardiac Adrenergic) that directly affect brain function. ANF affects regions of the brain that regulate emotions, learning and memory, and assists hormone balance. ICA regulates the release of dopamine and adrenalin.
When we are relaxed and peaceful, the heart exhibits a coherent heart rate pattern (seen on EKG) and sends a message to the brain to function in a parasympathetic state (relaxed, safe and secure). In this state, ANF and ICA assist optimal hormone function throughout the body.
But when we are highly stressed and fearful, the heart exhibits an incoherent heart rate variability pattern, and sends a message to the brain to function in a sympathetic state (fight or flight). A message from the heart causes the thalamus to shut down to any incoming sensory information not directly related to survival. In this state, cells in the brain die off, resulting in poor memory, fuzzy thinking and lack of interest, and ANF and ICA are inhibited, throwing off our hormonal balance and affecting our health.
So lets all keep our heart hormones happy. Laughter really is good medicine.
Marie- our bodies r certainly amazing and very complicated.
My drs all agree I am.shooting out large amts of adrenaline but don't seem to know what to do for it. My concern is.whether these bp spikes r damaging my heart etc. I certainly hope our bodies learn to compensate for all these things that r happening. I just know I am really miserable right now. We do have high stress right now so know that's not helping but stress is part of life so what does one do.
Have u heard anything from your Dr yet?
Beema
My drs all agree I am.shooting out large amts of adrenaline but don't seem to know what to do for it. My concern is.whether these bp spikes r damaging my heart etc. I certainly hope our bodies learn to compensate for all these things that r happening. I just know I am really miserable right now. We do have high stress right now so know that's not helping but stress is part of life so what does one do.
Have u heard anything from your Dr yet?
Beema
The interesting thing with that is that I would assume all of us have baroflex failure who have postural hypotension but only a few of us are having the spikes of high BP. There must be some reason for that that just isn't readily apparent to us. I know 50% of those with Pure Autonomic Failure have supine high BP but we have been talking about another type of high BP that comes with standing and sitting as well. I think because of the nature of what we are experiencing, in that it can be triggered suddenly, I will call it reactive, that it must be some sort of surges caused by the bodies trying to compensate for some mechanism and over compensating or some such.
Again, wouldn't it be great right now to have an autonomic testing facility so we could just go check this out and figure out what is going on. So far several people have mentioned that they have developed white coat syndrome when they did not have it before. I know mine has also gone up at times of stress and a few others have stated the same thing. Bet there are surges of more then one thing as well.
It sure is puzzling! I guess we keep reading and reporting what we find and when any of us get tested if we mention this phenomenon we may start finding pieces of the puzzle. So far information wise we have baroreflex failure contributing and the possibility of dopamine and/or adrenaline surges overcompensating. I guess there is the fact too stated in one article that some people who's bodies overcompensate do in time develop mechanisms that correct for the overcompensation so possibly some people go through this and then don't have the problem.
I know with BP I have experienced all sorts of combinations of systolic and dyastolic stability and instability in the past 9 months and it all just keeps changing.
The human body is amazingly complicated! Marie
Again, wouldn't it be great right now to have an autonomic testing facility so we could just go check this out and figure out what is going on. So far several people have mentioned that they have developed white coat syndrome when they did not have it before. I know mine has also gone up at times of stress and a few others have stated the same thing. Bet there are surges of more then one thing as well.
It sure is puzzling! I guess we keep reading and reporting what we find and when any of us get tested if we mention this phenomenon we may start finding pieces of the puzzle. So far information wise we have baroreflex failure contributing and the possibility of dopamine and/or adrenaline surges overcompensating. I guess there is the fact too stated in one article that some people who's bodies overcompensate do in time develop mechanisms that correct for the overcompensation so possibly some people go through this and then don't have the problem.
I know with BP I have experienced all sorts of combinations of systolic and dyastolic stability and instability in the past 9 months and it all just keeps changing.
The human body is amazingly complicated! Marie
I was just reading that baroreflex failure always causes large swings in bp both high and low because of inability of baroflex to keep bp within limits. Interesting
Marie-thanks I.will be anxious.to know what u.find out from.Dr.
I used to be on prilosec and then tried some others when it didn't work anymore and finally found nexium worked. Now it seems to be fizzling out. My insurance won't cover.it so have to pay full price so it should work really well at the price I pay.lol My Dr told me I could take zantac with it but haven't tried that yet.
Let me know when u get your result from Dr.
Beema
I used to be on prilosec and then tried some others when it didn't work anymore and finally found nexium worked. Now it seems to be fizzling out. My insurance won't cover.it so have to pay full price so it should work really well at the price I pay.lol My Dr told me I could take zantac with it but haven't tried that yet.
Let me know when u get your result from Dr.
Beema
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